Table 3.

Examples of Quotations for Selected Categories

Category	Subcategory	Interview	Quotation
Support of family and friends	Emotional support	11 479–484	“…a small circle of friends, because lots of friends have just gone and then they came back less frequently, but, at the end they stayed away altogether, because we aren't much use for anything anyway. That's the way it is. And the same even within the family. But we just have to put up with it.”
Health care services	Access to services	11 293–298	“At home we don't get neurological treatment.…At the very beginning it was a male neurologist…but later on he didn't make home visits anymore, and on the third, fourth floor at the top there was a small spiral staircase.”
	Treatment options	7 538–546	“Now and then there was psychological support, just something, where you can really spill your guts out or something like that. Well now I'd rather not carry on whining. Because, uh, I don't want to whine about it to my friends or my husband, he gets enough of how shitty it is sometimes. Or also how good it is sometimes in between. Uh, yes, just talking as a bit of support, that'd be nice.”
	Physician-patient interaction	6 473–477	“Uh, those are pretty private things, just things like attitude towards life or further progress or whatever, and all these are things you can talk about for hours, and I think that's why the doctor doesn't even bother getting into all that. Instead it's just acute problems, and that was it.”
Maintaining biographical continuity	Work	13 41–43	“In the course of my life, I…had to stop working, I couldn't do it anymore. Generally speaking, it's bad enough that I'll never be able to work again.”
	Leisure	14 54–57	“I would say that it's basically the active stuff that's changed. And that's what I really miss most.”
	Leisure	14 88–89	“Yes, the most stressful thing is that I can't do what I used to do any more.”
	Meaning/identity	8 132–141	“How can I explain this, I just happen to be known as a tough woman. And I'm also known in the neighborhood, to…everyone in the street, and I secluded myself, I just stayed in bed and didn't do anything at all.…. Because I was embarrassed, so, along the lines of, huh, there she is, the one we used to look up to, huh, so super and classy, all the things she does, and now suddenly there she is, crawling on all fours.”
	Societal acceptance	5 683–686	“…and just in public life, so wheelchairs can just go anywhere, knowing that wherever you go there is a toilet with wheelchair access or you can drive in at ground level.”