1. People who give biospecimens may help prevent diseases |
Remove ‘may'’ (Expert)
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1. People who give biospecimens help prevent diseases |
2. Giving a biospecimen may be a waste of a person's time |
Remove ‘may’ (Expert) |
2. Giving a biospecimen is a waste of a person's time |
3. Giving a biospecimen will get in the way of a person's medical care |
Remove ‘will’ (Expert) |
3. Giving a biospecimen gets in the way of a person's medical care |
4. Personal information is likely to be stolen from a biobank |
Change to positive attitude (Expert) |
4. Personal information is unlikely to be stolen from a biobank |
BANKS - Knowledge Scale
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Original Item
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Final item
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1. The results of research done with the biospecimens a person gives will show up in his/her medical records. |
“It's too wordy” (Cognitive Interview)
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1. Research results from biospecimens will show up in medical records |
2. A researcher will call a person if his/her biospecimens show risk for a disease |
“replace ‘call’ with ‘contact’” (Cognitive Interview)
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2. Researchers will always contact people if their biospecimens show risk for a disease |
BANKS - Self-efficacy Scale
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Original Item
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Final item
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1. I think I could give a biospecimen even if it hurts a bit |
“How painful is ‘a bit’? remove ‘a bit’” (Cognitive Interview)
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1. I think I could give a biospecimen even if it hurts |
2. I think I could give a biospecimen to a biobank even if I feel ill |
“sick? ill? How ill do I need to be not to be able to donate?” (Cognitive Interview)
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2. I think I could give a biospecimen to a biobank even if I am not feeling well |