. 2013 Jul 27;5(2):125–138. doi: 10.1007/s12687-013-0162-0

Table 2.

Responses to six survey questions regarding consent preferences by demographic characteristics

Demographic categories	Questions	Mid–Meeting				Exit survey
		"Using DBS for research is a good idea." (iClicker)	"Parents should be able to make decisions or set permissions on research done using their child’s bloodspots." (iClicker)	"Would you give researchers permission to use your (or your child’s) bloodspot?" (Workbook exercise)		"Parents should be able to decline having their baby’s blood stored for use in research."	"If my bloodspots, or my child’s bloodspots, were in the BioTrust,I would want to be asked each time before it was used for research."	"Assume your bloodspots, or your child’s bloodspots, are in the BioTrust. Which would you prefer?"
		% Agree	% Agree	No or Maybe	Yes DBS only or DBS & Health data	% Agree	% Agree	Ask my permission for DBS to remain	DBS remain in Biotrust
Location	Flint 1 & 2	72.7^{a, b, c, d, e}	95.0	80.0	20.0	84.1	89.9^{a, b}	74.6^a	25.4^a
	Grand Rapids 1 & 2	100^a	83.3	52.6	47.4	85.3	67.6	43.5	56.5
	Dearborn	100^b	86.8	45.8	54.2	59.4	58.1	33.3	66.7
	Detroit 1	90.9	95.4	66.7	33.3	91.5^a	84.8	70.7	29.3
	Jackson	94.9^c	84.6	38.2	61.8	59.5	51.4^a	37.8	62.2
	Petoskey	85.0	90.5	57.1	42.9	95.2	57.1	68.4	31.6
	Detroit 2	95.1^d	90.5	62.5	37.5	53.9^a	89.7	45.2	54.8
	Ann Arbor	96.3^e	70.4	29.6	70.4	71.4	50.0^b	29.6^a	70.4^a
Age	<25	91.8	87.2	56.6	43.4	83.3	72.6	57.7	42.3
	26–35	95.9	91.3	51.2	48.8	72.0	72.0	51.1	48.9
	36–45	95.9	80.6	48.3	51.7	70.8	63.9	41.4	58.6
	46–55	95.2	89.7	54.6	45.5	76.3	66.7	42.9	57.1
	>56	88.4	85.7	56.3	43.8	73.4	79.4	56.9	43.1
Race/Ethnicity	African–American	84.2^{a, b, c, d}	92.5	69.1	30.9	84.7^a	85.3^{a, b}	69.9^a	30.1^a
	Arab/Arab–American	100^a	86.8	45.8	54.2	59.4	58.1	33.3	66.7
	Asian/Pacific Islander	100^b	86.5	50.0	50.0	85.92^b	68.6	44.6	55.4
	Hispanic	97.5^c	87.8	55.0	45.0	52.6^{a, b}	84.2^a	39.4	60.6
	Native American	90.0	90.9	71.4	28.6	90.9	72.7	80.0	20.0
	White, not Hispanic	96.6^d	80.7	33.3	66.7	67.2	47.5^b	33.9^a	66.1^a
	Other	80.0	66.7	77.8	22.2	81.8	63.6	55.6	44.4
Education	High school/less	93.7	92.1	58.1	41.9	67.4	79.3	51.3	48.7
	Some/full college	90.2	86.5	56.9	43.1	79.9	67.3	54.0	46.0
	Graduate	98.6	80.7	40.0	60.0	78.3	68.1	45.3	54.7
Gender	Male	91.0	83.3	41.5^a	58.5^a	72.3	65.1	48.0	52.0
Gender	Female	91.8	88.3	57.8^a	42.3^a	76.9	73.9	53.4	46.6
Overall		90.9	87.2	53.9	46.1	76.1	72.2	52.1	47.9

a, b, c, d, e Pairwise significant differences (alpha = .05; testwise alpha = .05/[J(J–1)/2]