Table II.
Summary of Demographic Information for Participants and their Children with DS
| Discrete variables: n (%) | |
|---|---|
| Continuous variables: Range (Mean) | |
| Participant Demographics | |
| Female | 88 (87.1) |
| Male | 13 (12.9) |
| European | 79 (79) |
| Asian | 6 (6) |
| Mixed | 8 (8) |
| Othera | 7 (7) |
| Religious | 55 (56.7) |
| Non-religious | 42 (43.2) |
| Demographics related to Pregnancy/Delivery of Child with DS | |
| Had prenatal screening | 18 (18.2) |
| Did not have prenatal screening | 78 (78.8) |
| Unsure whether had prenatal screening | 3 (3.0) |
| Had diagnostic testing | 7 (7.0) |
| Did not have diagnostic testing | 92 (92.0) |
| Unsure whether had diagnostic testing | 1 (1.0) |
| Maternal Age at Delivery b | 23–47 (33.7) |
| Demographics for Children with DS | |
| Female | 53 (52.0) |
| Male | 49 (48.0)c |
| Age | 5 months–54 years (15 years) |
| DS Diagnosis made Prenatally | 7 (7.1) |
| DS Diagnosis made at Birth | 78 (79.6) |
| DS Diagnosis made >1 day post deliveryd | 13 (13.3) |
a
We also included the response options “African” and “Aboriginal” but no respondents selected these options.
b
This represents the 85 biological mothers who responded to this survey.
c
This includes one set of twins.
d
This ranged from days to months after birth; one child was not diagnosed until 11 months.
a,d
Three children were adopted and were not included in these percentages.