TABLE 4.

Participants’ Subjective and Objective Understanding by Consentee Relationship

	Adult		Parent		χ2
	N	%	N	%	P
Subjective understanding
“Do you know what kind of study you are participating in?”
Yes	60	82.2	47	88.7	.452
No	13	17.8	6	11.3
“Do you feel like you understand the role of DNA in your body?”
Yes	75	54.0	49	65.3	.234
Not really or somewhat	35	25.2	16	21.3
No	29	20.9	10	13.3
“I feel I have made an informed decision about sharing my genetic information.”
Agree	130	91.5	67	89.3	.772
Neutral or disagree	12	8.5	8	10.7
Objective understanding
“Who do you think can access and use your genetic information?”
Correctly identified who could access data	55	39.3	41	54.7	.044
Incorrectly identified who could access data	85	60.7	34	45.3