Table 1.
Background data on researchers interviewed
| N | % | |
|---|---|---|
| Sex | ||
| Female | 11 | 40 |
| Male | 17 | 60 |
|
| ||
| Education (academic degrees) | ||
| MD | 6 | 21 |
| PhD | 15 | 54 |
| MD–PhD | 5 | 18 |
| MS | 2 | 7 |
|
| ||
| Researchers’ affiliations | ||
| Academic medical center | 27 | 96 |
| The NIH | 1 | 4 |
|
| ||
| Researchers’ ranks | ||
| Full professor | 20 | 71 |
| Associate professor | 2 | 7 |
| Assistant professor | 3 | 11 |
| Administrator | 3 | 11 |
|
| ||
| Genetic methods used | ||
| WES | 6 | 21 |
| WGS | 1 | 4 |
| WES and WGS | 12 | 43 |
| Plans to do WES/WGS | 3 | 11 |
| No plans to do WES/WGS | 4 | 14 |
| Unreported | 2 | 7 |
|
| ||
| Genetic data generated in research | ||
| IFs | 11 | 39 |
| Non-IFs | 11 | 39 |
|
| ||
| Attitudes of researchers interviewed | ||
| Return everything | 2 | 7 |
| Return nothing | 4 | 14 |
| Return all or nothing | 4 | 14 |
| Unsure/mixed (support returning some results but not others) | 18 | 64 |
IF, incidental finding; NIH, National Institutes of Health; WES, whole-exome sequencing; WGS, whole-genome sequencing.