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. Author manuscript; available in PMC: 2015 May 1.
Published in final edited form as: Qual Life Res. 2013 Nov 7;23(4):1049–1058. doi: 10.1007/s11136-013-0548-9

Table 1.

Sample demographic and clinical information

Variable Categories with the variable
Age (in years) Mean =13.5 (SD = 4.0)
Years since diagnosis Mean = 5.6 (SD = 4.7)
Years since last treatment Mean = 3.3 (SD = 3.9)
Gender Male 57.0 %
Cancer type Brain 53.3 %
Leukemia 22.8 %
Hodgkin’s disease 6.4 %
Non-Hodgkin’s lymphoma 3.4 %
Ethnicity Hispanic origin (yes) 18.7 %
Race White 70.3 %
African American 9.5 %
Attending school Yes 93.7 %
Type of classrooma Regular classroom; no IEP 55.5 %
Regular classroom; with IEP 27.5 %
Special education 7.2 %
Other 9.7 %
Repeated grade Yes 11.3 %
Education (father) High school grad or less 35.0 %
Some college 23.3 %
College degree 24.8 %
Advanced degree 17.9 %
Education (mother) High school grad or less 26.9 %
Some college 28.0 %
College degree 29.1 %
Advanced degree 15.9 %
Current extent of diseaseb Local 41.6 %
Regional 7.9 %
Metastasis 4.9 %
Not evidence of disease 45.6 %
Treatment Chemotherapy 71.3 %
Radiotherapy 34.2 %
Surgery 71.0 %
Both chemotherapy and radiation 26.4 %
Radiation typec Limited field/localized 32.9 %
Craniospinal 25.9 %
Proton beam 15.9 %
Whole brain 4.7 %
Gamma knife 2.4 %
Intrabeam 1.2 %
Others 11.8 %
Karnofsky or Lansky performance statusd 100 75.9 %
90 15.5 %
70–80 7.1 %
50–60 1.5 %
Parent-rated child’s quality of life Excellent 32.7 %
Very good 38.0 %
Good 22.1 %
Fair or Poor 7.2 %
a

Only those attending school were included. IEP: Individualized educational program

b

% was calculated using non-missing data (n = 305). Disease severity was not documented in a consistent manner across recruitment sites as well as across cancer types and thus not reported here

c

% was calculated based on children who received radiotherapy (n = 170)

d

Clinician rated