Table 1.
Variable | Categories with the variable | |
---|---|---|
Age (in years) | Mean =13.5 (SD = 4.0) | |
Years since diagnosis | Mean = 5.6 (SD = 4.7) | |
Years since last treatment | Mean = 3.3 (SD = 3.9) | |
Gender | Male | 57.0 % |
Cancer type | Brain | 53.3 % |
Leukemia | 22.8 % | |
Hodgkin’s disease | 6.4 % | |
Non-Hodgkin’s lymphoma | 3.4 % | |
Ethnicity | Hispanic origin (yes) | 18.7 % |
Race | White | 70.3 % |
African American | 9.5 % | |
Attending school | Yes | 93.7 % |
Type of classrooma | Regular classroom; no IEP | 55.5 % |
Regular classroom; with IEP | 27.5 % | |
Special education | 7.2 % | |
Other | 9.7 % | |
Repeated grade | Yes | 11.3 % |
Education (father) | High school grad or less | 35.0 % |
Some college | 23.3 % | |
College degree | 24.8 % | |
Advanced degree | 17.9 % | |
Education (mother) | High school grad or less | 26.9 % |
Some college | 28.0 % | |
College degree | 29.1 % | |
Advanced degree | 15.9 % | |
Current extent of diseaseb | Local | 41.6 % |
Regional | 7.9 % | |
Metastasis | 4.9 % | |
Not evidence of disease | 45.6 % | |
Treatment | Chemotherapy | 71.3 % |
Radiotherapy | 34.2 % | |
Surgery | 71.0 % | |
Both chemotherapy and radiation | 26.4 % | |
Radiation typec | Limited field/localized | 32.9 % |
Craniospinal | 25.9 % | |
Proton beam | 15.9 % | |
Whole brain | 4.7 % | |
Gamma knife | 2.4 % | |
Intrabeam | 1.2 % | |
Others | 11.8 % | |
Karnofsky or Lansky performance statusd | 100 | 75.9 % |
90 | 15.5 % | |
70–80 | 7.1 % | |
50–60 | 1.5 % | |
Parent-rated child’s quality of life | Excellent | 32.7 % |
Very good | 38.0 % | |
Good | 22.1 % | |
Fair or Poor | 7.2 % |
Only those attending school were included. IEP: Individualized educational program
% was calculated using non-missing data (n = 305). Disease severity was not documented in a consistent manner across recruitment sites as well as across cancer types and thus not reported here
% was calculated based on children who received radiotherapy (n = 170)
Clinician rated