Table 2. Demographic characteristics of the observed ALS cases in the data sources.
CARE | ALS | University | Clinical | Clinics/ | NPD | |
Registry | Clinics | Centers | Hospital | and MCC | ||
Number of cases | 539.9 | 438 | 256 | 122 | 130 | 4 |
Estimated completeness (%) | 81% | 47% | 23% | 24% | 1% | |
Age (years): Mean | 64.2 | 61.5 | 64.6 | 67.6 | 66.3 | |
(SD) | (12.1) | (11.3) | (12.4) | (11.1) | (19.4) | |
Gender ratio (men:women) | 1.1 | 1.4 | 0.8 | 0.8 | 1 |
Abbreviations:
estimated total number; CARE capture-recapture methods; NPD and MCC: private neurological practice doctors and medical care centers.