Appendix C. Respondent Race/Ethnicity by Reports that Specific Aspects of End-of-Life Communication Did Not Occur
| African American | Other Minority | Non-Hispanic White | ||||
|---|---|---|---|---|---|---|
| RACE Patient Surveys | n | % | n | % | n | % |
| Did not talk with you about your feelings concerning the possibility that you may get sicker | 25 | 14.5 | 10 | 13.0 | 124 | 25.7 |
| Did not talk with you about the details concerning the possibility that you may get sicker | 26 | 15.1 | 14 | 18.2 | 136 | 28.2 |
| Did not talk with you about how long you may have to live | 75 | 43.6 | 34 | 44.2 | 266 | 55.2 |
| Did not talk with you about what dying may be like | 80 | 46.5 | 37 | 48.1 | 288 | 59.8 |
| Did not involve you in decisions about treatments you want if you get too sick to speak for yourself | 67 | 39.0 | 28 | 36.4 | 215 | 44.6 |
| Did not ask about the things in life that are important to you | 49 | 28.5 | 21 | 27.3 | 172 | 35.7 |
| Did not ask about your spiritual or religious beliefs | 53 | 30.8 | 32 | 41.6 | 242 | 50.2 |
| Family Surveys | ||||||
| Did not talk with you about your feelings that the patient might get sicker | 14 | 17.1 | 6 | 18.2 | 78 | 34.8 |
| Did not talk with you about when or how the patient might get sicker | 17 | 20.7 | 6 | 18.2 | 75 | 33.5 |
| Did not talk with you about how long the patient might have to live | 29 | 35.4 | 15 | 45.5 | 117 | 52.5 |
| Did not ask about the kinds of treatments the patient would want if unable to communicate | 12 | 14.6 | 6 | 18.2 | 59 | 26.3 |
| Did not ask about the things in life that are important to the patient | 21 | 25.6 | 11 | 33.3 | 94 | 42.0 |
| Did not ask about your spiritual or religious beliefs | 23 | 28.0 | 16 | 48.5 | 123 | 54.9 |
| High school or less | Trade school or some college | College degree or higher | ||||
|---|---|---|---|---|---|---|
| EDUCATIONPatient Surveys | n | % | n | % | n | % |
| Did not talk with you about your feelings concerning the possibility that you may get sicker | 46 | 16.4 | 48 | 21.8 | 62 | 30.2 |
| Did not talk with you about the details concerning the possibility that you may get sicker | 50 | 17.9 | 52 | 23.6 | 71 | 34.6 |
| Did not talk with you about how long you may have to live | 127 | 45.4 | 115 | 52.3 | 130 | 63.4 |
| Did not talk with you about what dying may be like | 141 | 50.4 | 124 | 56.4 | 135 | 65.9 |
| Did not involve you in decisions about treatments you want if you get too sick to speak for yourself | 102 | 36.4 | 94 | 42.7 | 109 | 53.2 |
| Did not ask about the things in life that are important to you | 83 | 29.6 | 65 | 29.5 | 90 | 43.9 |
| Did not ask about your spiritual or religious beliefs | 100 | 35.7 | 101 | 45.9 | 121 | 59.0 |
| Family Surveys | ||||||
| Did not talk with you about your feelings that the patient might get sicker | 13 | 14.4 | 40 | 32.0 | 44 | 36.7 |
| Did not talk with you about when or how the patient might get sicker | 14 | 15.6 | 44 | 35.2 | 39 | 32.5 |
| Did not talk with you about how long the patient might have to live | 33 | 36.7 | 62 | 49.6 | 65 | 54.2 |
| Did not ask about the kinds of treatments the patient would want if unable to communicate | 17 | 18.9 | 23 | 18.4 | 36 | 30.0 |
| Did not ask about the things in life that are important to the patient | 22 | 24.4 | 54 | 43.2 | 49 | 40.8 |
| Did not ask about your spiritual or religious beliefs | 30 | 33.3 | 62 | 49.6 | 70 | 58.3 |
| $1,000/month or Less | $1,000–$3,000/month | More than $3,000/month | ||||
|---|---|---|---|---|---|---|
| INCOMEPatient Surveys | n | % | n | % | n | % |
| Did not talk with you about your feelings concerning the possibility that you may get sicker | 17 | 9.9 | 47 | 20.8 | 68 | 30.1 |
| Did not talk with you about the details concerning the possibility that you may get sicker | 18 | 10.5 | 51 | 22.6 | 76 | 33.6 |
| Did not talk with you about how long you may have to live | 64 | 37.4 | 117 | 51.8 | 137 | 60.6 |
| Did not talk with you about what dying may be like | 74 | 43.3 | 122 | 54.0 | 151 | 66.8 |
| Did not involve you in decisions about treatments you want if you get too sick to speak for yourself | 53 | 31.0 | 85 | 37.6 | 124 | 54.9 |
| Did not ask about the things in life that are important to you | 34 | 19.9 | 74 | 32.7 | 95 | 42.0 |
| Did not ask about your spiritual or religious beliefs | 53 | 31.0 | 94 | 41.6 | 134 | 59.3 |