Table 2.
Unstandardized and standardized factor loadings for PRISM barrier items for parents and adolescents
| Parent of adolescent (n=135) | Adolescent (n=149) | Parent of child (n=113) | ||||
|---|---|---|---|---|---|---|
|
| ||||||
| Unstd† (s.e.) | Std‡ | Unstd† (s.e.) | Std‡ | Unstd† (s.e.) | Std‡ | |
|
| ||||||
| Factor 1. Understanding/Organizing Care | ||||||
| It’s hard for my child and I to stay organized enough to keep track of medications or other things related to his/her illness. | 1.11 (0.06) | 0.69 | 1.27 (0.14) | 0.80 | 1.06 (0.05) | 0.89 |
| My child and I have trouble understanding what the doctors tell us to do for his/her regimen. | 1.22 (0.08) | 0.62 | 1.37 (0.15) | 0.87 | --- | --- |
| It’s hard for my child and I to plan things out carefully, so sometimes we don’t get around to following his/her regimen. | 1.10 (0.08) | 0.65 | 1.22 (0.13) | 0.77 | 1.03 (0.06) | 0.86 |
| When there are changes to his/her regimen, my child and I sometimes get confused. | 1.10 (0.07) | 0.80 | 0.89 (0.13) | 0.56 | 1.00 (0.00) | 0.84 |
| Sometimes my child and I can’t remember everything we’re supposed to do about his/her illness. | 1.00 (0.00) | 0.79 | 1.00 (0.00) | 0.63 | 0.83(0.06) | 0.69 |
| When my child feels anxious or nervous about something, it’s hard for him/her to follow his/her regimen. | 1.04 (0.07) | 0.58 | --- | --- | 1.04 (0.04) | 0.88 |
| Factor 2. Regimen Pain and Bother | ||||||
| Following his/her regimen causes my child physical pain and discomfort. | 1.07 (0.08) | 0.82 | 1.14 (0.06) | 0.93 | 0.95 (0.09) | 0.73 |
| My child’s regimen has side effects that he/she really doesn’t like. | 1.13 (0.08) | 0.87 | 1.00 (0.00) | 0.82 | 1.05 (0.09) | 0.81 |
| My child feels that his/her regimen takes a lot of time and work. | 0.92 (0.08) | 0.70 | 0.81 (0.07) | 0.66 | 1.07 (0.08) | 0.82 |
| My child’s regimen causes changes to his/her body that he/she really doesn’t like. | 1.00 (0.00) | 0.76 | 1.04 (0.06) | 0.84 | 1.00 (0.00) | 0.77 |
| Factor 3. Denial | ||||||
| My child feels that nothing bad would happen to him/her if he/she didn’t follow his/her regimen. | 1.00 (0.00) | 0.82 | --- | --- | --- | --- |
| My child refuses to give up time with his/her friends to take care of his/her illness. | 0.81 (0.09) | 0.67 | --- | --- | --- | --- |
| My child tries to forget that he/she has an illness. | 0.82 (0.08) | 0.68 | --- | --- | --- | --- |
| I get angry when my child makes a slip in taking care of his/her diabetes (he/she doesn’t take care of his/her diabetes). | 0.67 (0.09) | 0.55 | --- | --- | 0.83 (0.08) | 0.71 |
| My child thinks, “None of my friends have to deal with this, why do I?” | --- | --- | --- | --- | 0.83 (0.08) | 0.71 |
| My child feels that our family doesn’t understand what it’s like to live with his/her illness. | --- | --- | --- | --- | 1.00 (0.00) | 0.86 |
| Factor 4. Healthcare Team Interactions | ||||||
| My child and I don’t always trust the doctors and nurses. | 1.13 (0.09) | 0.88 | 1.00 (0.00) | 0.82 | 0.91 (0.08) | 0.81 |
| The doctors treat my child like a little kid who can’t take care of him/herself. | 1.01 (0.07) | 0.79 | 1.03 (0.06) | 0.85 | 0.89 (0.08) | 0.80 |
| The doctors are too busy or rushed to talk with my child and I about his/her illness and regimen. | 1.00 (0.00) | 0.78 | 0.91 (0.06) | 0.75 | 1.00 (0.00) | 0.83 |
| The doctors don’t seem to understand how much my child’s regimen gets in the way of important things in his/her life. | 0.91 (0.83) | 0.71 | --- | --- | --- | --- |
| My child feels that his/her doctors are friendly and easy to talk to. | --- | --- | 1.06 (0.06) | 0.87 | --- | --- |
| The doctors do a good job of explaining things to my child and me. | --- | --- | 0.98 (0.07) | 0.81 | --- | --- |
| Factor 5. Family Interactions | ||||||
| My child feels that our family doesn’t understand what it’s like to live with his/her illness. | 0.96 (0.06) | 0.87 | 1.00 (0.00) | 0.76 | --- | --- |
| Our family gives my child a lot of support to help him/her follow his/her regimen. | 1.00 (0.00) | 0.90 | 1.25 (0.10) | 0.94 | --- | --- |
| My child has someone in our family to talk to about his/her diabetes. | 0.82 (0.05) | 0.74 | --- | --- | --- | --- |
| I listen to my child’s ideas about taking care of his/her diabetes. | 0.82 (0.08) | 0.74 | --- | --- | --- | --- |
| I understand how my child feels about having diabetes. | 0.30 (0.09) | 0.27 | 1.01 (0.08) | 0.77 | --- | --- |
| I get angry when my child makes a slip in taking care of his/her diabetes (he/she doesn’t take care of his/her diabetes). | --- | --- | 0.62 (0.09) | 0.47 | --- | --- |
| Factor 6. Peer Interactions | ||||||
| My child doesn’t want his/her friends to know about his/her illness. | 1.00 (0.00) | 0.75 | 1.00 (0.00) | 0.81 | --- | --- |
| My child thinks, “None of my friends have to deal with this, why do I?” | 0.71 (0.10) | 0.53 | 0.84 (0.09) | 0.68 | --- | --- |
| My child doesn’t mind if his/her friends bring up his/her illness or ask him/her questions about it. | --- | --- | 1.01 (0.08) | 0.82 | --- | --- |
†
Unstandardized factor loadings are on the original item scales, reflecting the extent to which the domain covaries with the item.
‡
Standardized factor loadings reflect the extent to which the domain is correlated with the item.