Table 4.
Results of the Family Feedback Questionnaire
|
Item |
Family carers (N = 18) |
|||
|---|---|---|---|---|
| Mean | SD | n Agree (SA + A) | n Disagree (SD + D) | |
|
DT was helpful to my family member |
4.22 |
0.647 |
16 |
0 |
|
DT has given my family member a heightened sense of purpose or meaning |
3.87 |
1.060 |
10 |
2 |
|
DT helped increase my family member’s sense of dignity |
3.56 |
0.984 |
8 |
2 |
|
DT helped prepare my family member for the end of life, whenever that may occur |
3.33 |
0.970 |
9 |
3 |
|
DT was an important component of my family member’s care as any other aspect of their care, including symptom management |
3.61 |
0.979 |
11 |
3 |
|
DT helped reduce my family member’s suffering |
3.22 |
1.003 |
7 |
5 |
|
DT helped increase my family member’s hopefulness about the future |
3.17 |
0.857 |
6 |
4 |
|
The DT document helped me during this time of our life |
3.33 |
1.085 |
9 |
4 |
|
DT has helped me prepare for the end of life of my family member, whenever that may occur |
3.11 |
0.832 |
5 |
4 |
|
DT was helpful in reducing my feelings of stress as a carer |
3.00 |
0.907 |
5 |
6 |
|
DT helped me feel closer to my family member |
2.94 |
0.938 |
6 |
6 |
|
DT has increased my hopefulness about the future |
3.11 |
0.758 |
6 |
4 |
|
The DT document will continue to be a source of comfort for my family and me |
3.83 |
0.618 |
13 |
0 |
|
I would recommend DT to other patients of family members who are dealing with MND |
4.00 |
0.686 |
14 |
0 |
| Scoring: 1 strongly disagree , 2 disagree , 3 neither agree or disagree , 4 agree , 5 strongly agree . | ||||