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. 2014 Apr 30;14(3):263–267. doi: 10.1097/ACI.0000000000000059

Table 1.

Unmet needs

Lack of FPIES awareness among providers Lack of active funding to support initiatives and studies
Limited definition of disease Financial burden to pay for expensive and often uncovered elemental formula
Lack of diagnostic and treatment guidelines Lack of collaboration with alternative providers many families turn to due to lack of support and available treatment
Obstacles and delay in finding diagnosis Poor quality of life
Poor definition and understanding of acute versus chronic presentations Nutritional, social, and emotional burdens that come with avoidance
Poorly understood prevalence
Lack of collaborative care among providers
Limited representation in literature