Table 1.
Summary of participant information
| Role | Total number | Gender M:F | Education (years) range and median | Religion a | SC disease history |
|---|---|---|---|---|---|
|
Staff: Community facilitators |
5 |
4:1 |
12-16y 14y |
4C/1M |
No direct history |
|
Staff: Field workers |
12 |
10:2 |
12-14y 12y |
10C/2M |
1 field worker - sister has 2 children with SCD |
| |
|
|
|
|
1 field worker - 2 affected children, 2 further children died SCD |
|
Staff: Othersb |
3 |
0:3 |
12-16y |
3C |
1 data entry clerk - carrier, 2 brothers with SCD, 1 died; carrier child |
|
Health managers |
4 |
3:1 |
16-18y 16y |
4C |
No direct history |
|
Chiefs/ assistant chiefs |
18 |
16:2 |
7-14y 12y |
17C/1M |
No direct history |
|
KCRs: 5 chair/vice chairs; 4 secretary/vice secretaries; 9 members |
18 |
9:9 |
3-16y 8y |
14C/4M |
1 KCR rural area – 1 child with SCD |
| Community members: affected mothers | 3 | 0:3 | 6-12y 6y | 3C | 2 with 2 affected children; 1 with 1 affected child |
aC= Christian; M = Muslim.
bTwo data entry clerks and one junior scientist.