Table 3.
Informant perceptions of unmet need/concerns by the location where the majority of care was provided during last 30 days of life
|
Domain |
Perception of unmet need/concerns |
||||
|---|---|---|---|---|---|
| |
Frequency (percent) |
||||
| All | Home | Hospital (acute/chronic care) | Hospital- palliative unit | Long-term care | |
| Physical comfort and emotions: |
|
|
|
|
|
| Decedent did not receive desired help for: | |||||
| Pain |
108 (8.2) |
46 (9.0) |
23 (7.7) |
8 (6.7) |
31 (8.1) |
| Dyspnea§ |
74 (5.6) |
49 (9.5) |
12 (4.0) |
0 (0) |
13 (3.4) |
| Emotional support† |
206 (15.7) |
84 (16.3) |
63 (21.2) |
11 (9.2) |
48 (12.5) |
| Promote shared decision making§: |
|
|
|
|
|
| Concerns with communication |
332 (27.2) |
106 (23.8) |
110 (37.8) |
31 (26.1) |
85 (23.3) |
| Concerns with the decedent being treated with respect§ |
194 (14.9) |
41 (8.1) |
71 (24.4) |
19 (15.8) |
63 (16.5) |
| Attend to the needs of the family: |
|
|
|
|
|
| a) Unmet need in obtaining information‡ |
525 (40.2) |
220 (43.1) |
137 (46.8) |
37 (30.8) |
131 (34.3) |
| b) Concerns with knowing what to expect† |
862 (66.0) |
346 (67.7) |
211 (72.0) |
80 (66.7) |
225 (58.9) |
| Concerns about support for the emotional and spiritual needs of the family |
860 (65.8) |
338 (66.4) |
196 (66.4) |
77 (64.2) |
249 (65.0) |
| Coordination of care concerns† |
202 (15.9) |
81 (16.2) |
61 (21.7) |
11 (9.2) |
49 (13.2) |
| Overall satisfaction‡: |
|
|
|
|
|
| Not completely satisfied | 729 (57.0) | 256 (51.1) | 190 (66.4) | 64 (54.2) | 219 (58.6) |
Differences were assessed using Pearson chi square and Fishers exact tests of association for categorical variables: †p < 0.01; ‡p < 0.001; §p < 0.0001.