Community Biobank exists as part of a university but operates over one hundred miles from campus in a small town setting. It originated by way of a very large philanthropic donation from one individual and its aim is to collect specimens from all residents of a particular geographic area. Healthy individuals are recruited at a variety of community-based events and doctor’s visits.
National Biobank is funded by a national governing body and recruits healthy participants within one state’s geographic limits. National Biobank collaborates with a local university in its sample collection. Participants were initially recruited in family practice settings using leftover specimens, but in 2006, recruitment shifted to actively requesting samples from healthy participants.
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Hospital Biobank is housed within a large university and acquires both healthy and non-healthy volunteers from opportunistic hospital and university employee populations and maintains an opt-out format for consent. Specimens collected for other clinical reasons are re-purposed for use in this biobank.
State Biobank is a state-run biobank that, through an opt-in consent process, collects leftover dried bloodspots originally collected for newborn screening. This large biobank aims to make use of these specimens for a wide variety of medical and public health research efforts.
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Advocacy Biobank is a consortium of advocacy based, disease-focused organizations that stores samples in one repository for use by researchers worldwide.
Disease-Focused Biobank is part of a research network of academic institutions that specifically collect specimens from hospital populations of patients with HIV/AIDS. We interviewed biobank employees from each of two universities in the network. Disease-Focused Biobank specimens are shared with the larger network to advance HIV research.
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