Table II.

Standards - 1. Scope of care

The HTC will: Establish correct diagnoses. Establish and maintain a full complement of core team members Develop visibility in the bleeding disorder and medical community. Strive to enrol all members of the target population in its region. Establish a collaborative relationship among core team members Establish a routine for patient access to regular and emergency care. Establish a process for referring patients to services not provided within the programme. Register patients in CHARMS (Canadian Haemophilia Assessment and Resource Management System) and CHR (Canadian Haemophilia Registry) databases. Provide the patient with documentation that identifies his/her bleeding disorder and recommended treatment. Provide education to affected individuals, family members, health care givers and others as necessary. Have a home infusion program, in which patients and families are instructed in home therapy, including prevention and recognition of bleeds and correct practices. Provide primary and secondary prophylaxis regimens as appropriate (all pediatric patients with severe haemophilia should be considered). Provide early intervention and follow-up care to reduce long-term complications. Network with outside agencies creating formal linkages to provide efficient access to their services. Encourage and facilitate eligible members to participate in activities of AHCDC, CANHC, CPHC, CSWHC and other relevant HTC working groups.