Table 1.
Descriptive demographic and baseline characteristics of participants
| FMP (n = 84) | CLP (n = 80) | |
|---|---|---|
|
Gender [n (%)] |
|
|
| ▪ Female |
61 (73%) |
58 (73%) |
| ▪ Male |
23 (27%) |
22 (28%) |
|
Age (years) |
|
|
| Mean (S.D.) |
48.0 (10.2) |
50.1 (9.1) |
| Range |
23-73 |
28-70 |
|
Ethnicity [n (%)] |
|
|
| ▪ White English |
68 (85%) |
69 (92%) |
| ▪ White British |
7 (9%) |
5 (7%) |
| ▪ Other |
5 (6%) |
1 (1%) |
| ▪ Not stated |
4 |
5 |
|
Disease type (self-reported) [n (%)] |
|
|
| ▪ Benign |
4 (5%) |
2 (3%) |
| ▪ Relapsing-remitting |
35 (43%) |
40 (51%) |
| ▪ Secondary progressive |
16 (20%) |
23 (29%) |
| ▪ Primary progressive |
5 (6%) |
8 (10%) |
| ▪ Participant states “Don’t know” |
21 (26%) |
5 (6%) |
| ▪ Not stated |
3 |
2 |
|
APDDS score (Adapted Patient Determined Disease Steps) [n (%)] |
|
|
| ▪ 3 or less (No limitations on walking) |
18 (22%) |
15 (19%) |
| ▪ 4 or 5 (MS interferes with walking) |
37 (46%) |
42 (54%) |
| ▪ 6 or more (At min., needs stick/crutch to walk 100 m) |
26 (32%) |
21 (27%) |
| ▪ Not stated |
3 |
2 |
|
Level of education [n (%)] |
|
|
| Highest qualification achieved: |
|
|
| ▪ No qualifications |
8 (10%) |
8 (10%) |
| ▪ One or more GCSE (or equiv.) |
36 (46%) |
29 (38%) |
| ▪ One or more A level (or equiv.) |
10 (13%) |
12 (16%) |
| ▪ First degree (or equiv.) |
16 (20%) |
19 (25%) |
| ▪ Higher degree/professional qualification |
9 (11%) |
8 (11%) |
| ▪ Not stated |
5 |
4 |
|
Employment status [n (%)] |
|
|
| ▪ In full time employment (>30 hours per week) |
15 (18%) |
11 (14%) |
| ▪ In part-time employment (≤30 hours per week) |
11 (14%) |
13 (17%) |
| ▪ Self-employed |
4 (5%) |
4 (5%) |
| ▪ Not in paid employment (unemployed, in education, retired, looking after home) |
51 (63%) |
50 (64%) |
| ▪ Not stated |
3 |
2 |
|
Marital status [n (%)] |
|
|
| ▪ Married/cohabiting |
63 (78%) |
54 (71%) |
| ▪ Single |
5 (6%) |
7 (9%) |
| ▪ Separated/divorced |
9 (11%) |
14 (18%) |
| ▪ Widowed |
4 (5%) |
1 (1%) |
| ▪ Not stated |
3 |
4 |
|
Years since diagnosis [n (%)] |
|
|
| ▪ <1 yr |
2 (3%) |
4 (5%) |
| ▪ 1–5 yrs |
32 (40%) |
21 (27%) |
| ▪ 6–10 yrs |
13 (16%) |
19 (24%) |
| ▪ 11–15 yrs |
21 (26%) |
12 (15%) |
| ▪ ≥16 yrs |
12 (15%) |
22 (28%) |
| ▪ Not stated | 4 | 2 |
Percentages rounded to nearest integer and, thus, might not sum exactly to 100%.
CLP, current local practice; FACETS, Fatigue: Applying Cognitive behavioural and Energy effectiveness Techniques to lifeStyle; GCSE, General Certificate of Secondary Education; MS, multiple sclerosis.