Table 1.
Patient characteristics: sociodemographics, clinical, and perception/beliefs
| Characteristics | # of patients (%) |
|---|---|
| Sociodemographics | |
| Median age at survey | 57.5 years (SD 10.8) |
| Gender | |
| Male | 13 (50.0) |
| Female | 13 (50.0) |
| Race/ethnicity | |
| Non-hispanic white | 23 (88.5) |
| Other | 3 (11.5) |
| Education | |
| Completed college | 14 (53.9) |
| Not college graduate | 12 (46.2) |
| Handedness | |
| Right | 24 (92.3) |
| Right/ambidextrous | 2 (7.7) |
| Living arrangement | |
| Alone | 4(15.4) |
| With others | 22(84.6) |
| Marital status | |
| Married with a partner | 21(80.8) |
| Single/widowed | 5(19.2) |
| Children | |
| Yes | 24 (92.3) |
| No | 2 (7.7) |
| Lifetime occupation | |
| White collar | 20 (80.0) |
| Blue collar | 5 (20.0) |
| Employment status | |
| Employed | 13 (50.0) |
| Retired | 5 (19.2) |
| Unemployed/other | 8 (30.8) |
| Health insurance | |
| Private | 17 (65.4) |
| Medicare/COBRA/None | 9 (34.6) |
| Income, annual household | |
| <$50,000 | 5 (21.7) |
| $50,000–99,999 | 6 (26.1) |
| ≥$100,000 | 12 (52.2) |
| Clinical | |
| Type of surgical resection | |
| Biopsy | 4 (15.4) |
| Subtotal | 10 (38.5) |
| Gross/total | 12 (46.2) |
| Laterality | |
| Left | 14 (53.9) |
| Right | 9 (34.6) |
| Bilateral/midline | 3 (11.5) |
| Primary site | |
| Frontal | 11 (42.3) |
| Temporal | 10 (38.5) |
| Parietal/ventricle, NOS/spinal cord/brain, NOS | 5 (19.2) |
| Histology | |
| Glioblastoma | 21 (80.8) |
| Anaplastic astrocytoma/oligodendroglioma/oliastrocytoma/mixed glioma | 5 (19.2) |
| Tumor size (mm) | |
| ≤36 | 18 (69.2) |
| 37+ | 8 (30.8) |
| Length hospital stay | |
| 0–3days | 9 (34.6) |
| 4+ days | 17 (65.4) |
| Disposition discharge | |
| Home, independent | 12 (70.6) |
| Home, dependent/rehabilitation center | 5 (29.4) |
| Unknown | 9 (34.6) |
| Postneurodiagnostic results | |
| Evidence of tumor | 14 (56.0) |
| No evidence | 7 (28.0) |
| Postneurodiagnostic test, biopsy or results unknown | 4 (16.0) |
| Comorbid condition | |
| None | 8 (30.8) |
| 1 | 6 (23.1) |
| 2 | 7 (26.9) |
| 3 or more | 5 (19.2) |
| Chemotherapy ended by survey completion | |
| Yes | 2 (8.0) |
| No | 23 (92.0) |
| Perceptions/beliefs | |
| Ease of travel to/from doctor visits/treatment | |
| Very easy/easy | 11 (42.3) |
| Sometimes easy, sometimes difficult/difficult | 15 (57.7) |
| Perception of income | |
| I can save | 5 (19.2) |
| I get enough for my needs | 9 (34.6) |
| I am just able to make ends meet | 6 (23.1) |
| I don't get enough for my needs | 4 (15.4) |
| I am in desperate need | 2 (7.7) |
| Out-of pocket expense | |
| Very manageable | 7 (26.9) |
| Somewhat manageable | 13 (50.0) |
| Barely manageable | 2 (7.7) |
| Not at all manageable | 4 (15.4) |
| Treatment expectation | |
| Be cured of my cancer | 11 (42.3) |
| Some cancer left/symptoms left | 10 (38.5) |
| No expectations/no effect | 5 (19.2) |
| Prognosis explained | |
| Very well | 14 (53.9) |
| Somewhat | 10 (38.5) |
| Not very well | 2 (7.7) |
| Current health | |
| Same/better | 8 (32.0) |
| Worse | 17 (68.0) |
| Any therapy (physical, occupational, speech) | |
| Yes | 10 (38.5) |
| No | 16 (61.5) |
| Diagnosis to survey | |
| 3–7 months | 15 (57.7) |
| >7 months | 11 (42.3) |
| Radiation completion to survey | |
| 1–4 months | 14 (56.0) |
| ≥5 months | 11 (44.0) |
| Survey administration | |
| Paper-based | 17 (65.4) |
| Web-based | 9 (34.6) |