Table 1.
Characteristics of the patients in the 2 cohorts studied*
| Stanford University (n = 111) | Johns Hopkins University (n = 102) | Total (n = 213) | |
|---|---|---|---|
| Sex | |||
| Female | 78 (70) | 75 (74) | 153 (72) |
| Male | 33 (30) | 27 (27) | 60 (28) |
| Ethnicity | |||
| White (only) | 73 (66) | 82 (80) | 155 (73) |
| White (Latino) | 11 (9.9) | 0 (0) | 11 (5.2) |
| Asian | 20 (18) | 3 (3.0) | 23 (11) |
| African American | 6 (5.4) | 12 (12) | 18 (8.5) |
| Other/missing | 1 (0.9) | 5 (4.9) | 6 (2.8) |
| Age at diagnosis, years | |||
| Median (range) | 47.1 (4.6–86.9) | 46.9 (10.8–80.1) | 47.0 (4.6–86.9) |
| Mean ± SD | 48.1 ± 16 | 47.8 ± 15 | 48.0 ± 16 |
| Followup, years | |||
| Median (range) | 4.3 (0.2–38.4) | 4.0 (0.3–29.4) | 4.1 (0.2–38.4) |
| Mean ± SD | 5.6 ± 5.4 | 4.6 ± 3.4 | 5.2 ± 4.6 |
| Followup ≥3 years | 76 (68) | 74 (73) | 151 (71) |
| Clinically amyopathic disease | 23 (21) | 15 (15) | 38 (18) |
*
Except where indicated otherwise, values are the number (%) of patients. There were no significant differences between the groups except for ethnicity (P < 0.0001).