Table 5.

Patient’s Decisional Role Preference, Category, and Description

Subject ID	First Card in CPS	Decisional Category	Patient’s Description of Preferred Decisional Role	Description Matches with Decisional Category
01	B	Active	So it was neutral at first, and then as some of the shock wore off and some of the reality came in, I started participating more in my treatment.	Yes
02	C	Shared	The fact that before treatments are started, I know what it is going to be, and if there is for some reason a drug that I don’t feel I could take, then I still have a right to say no to that.	Yes
03	D	Passive	I definitely want to be involved in the decision, but knowing that the doctor knows more than I do about the treatments that are available and which one I’m best suited for, I would go with the doctor’s opinion after I’ve heard what the options are and discussed them.	Yes
04	B	Active	I would like to have full involvement. I will listen to what the doctor says or what he feels, because I feel he has that knowledge. And I probably would take his recommendation, but I would make the decision myself.	Yes
05	C	Shared	My oncologist seems to think that acupuncture and massage are all fine, but those are things that I’ve explored myself. So I take his advice, and then I do my other kinds of things that are alternative sorts of things, too.	Yes
06	C	Shared	I take the input from what I've gotten back from the tests that my doctor sends me. But that wasn't good enough for me because I wanted a second opinion.	Yes
07	C	Shared	Now that I’ve kind of had a chance to step back and have a more sober, view of it and more objective view, I feel that I’m in a better frame of mind, if you would, to maybe look at the options and discuss this in a more objective manner.	Yes
08	C	Shared	I want to know about things. I'm curious. I want to know as much as I can. And then with the help of my husband and my kids, make a decision.	Yes
09	B	Active	Well, I will make my decision along with my husband at that point on which is best for us as a family, and we rely upon our doctor's medical advice to lead us to a conclusion.	Yes
10	B	Active	I ask her [my doctor] everything I can think of when we meet. I listen to what she has to tell me. If the decision is something clear enough that I can make it immediately or if I need to make it immediately, I do.	Yes
11	C	Shared	I want her [my doctor] to see how I’m doing and see what condition I am and how I’m progressing, you know; worse or better, then, make her decision based on that.	No
12	C	Shared	I want to know. I am very, very nosey that way. I want to know.	No
13	B	Active	My wife was heavily involved in making the decision, too. Since she was very much affected by it, so together we made the decision. I probably had a little more influence than her, but her opinion was considered as well.	Yes
14	C	Shared	Well, my preference is and it has been so far is shared involvement with the doctor and also a key to it has been the ability to be able to get a second opinion, so I can have two experts look at the situation.	Yes
15	B	Active	I write things down and I try to get as many opinions as possible. And of course I think the doctor’s opinion about what to do is 90% of what it is. But I want to understand, if decisions are being made on my behalf, why they're being made.	Yes
16	B	Active	I want to know, I like to understand, really, why something is being done. Not that I truly would understand it as a lay person, but I want to understand the logic for doing something and I do want to understand the potential for being successful and risk factors, you know, because I want to use that to gauge how fast I want to live my life.	No
17	C	Shared	I would like to go over the pros and cons of therapy. I see them in my life for me and then make that decision with the doctor as far as what the doctor feels after the doctor heard where I was coming from. The doctor knows what would be the best for me in this situation because the doctor has the overall picture and I only have pieces.	Yes
18	C	Shared	Well, I like to have the best possible treatment plans to cure my disease, and knowing my doctor, I was confident at that time to listen to her opinion, and we made a decision collectively to further my treatment.	Yes
19	C	Shared	I’d like to be well informed of my choices, on both the pros and cons of those choices, in language I can understand, so that I can help participate in making the choice.	Yes
20	B	Active	Well, we knew that it was incurable, and the medical community nationwide seemed to be taking the transplant approach to improve the possibilities of longevity. So we were impressed with the facility and all of the staff and have decided to go ahead in that direction.	Yes