Table 1.
Characteristics of AYA HOPE Participants (N=465)
| All Survivors | Continuous Insurance* (N=347) |
At least some time uninsured (N=118) |
|||
|---|---|---|---|---|---|
| N | % | % | % | p-value | |
| Demographic Characteristics † | |||||
| Age at Diagnosis | |||||
| 15-19 | 62 | 13.3 | 80.7 | 19.4 | 0.45 |
| 20-24 | 81 | 17.4 | 71.6 | 28.4 | |
| 25-39 | 322 | 69.3 | 74.2 | 25.8 | |
| Sex | |||||
| Male | 287 | 61.7 | 71.8 | 28.2 | 0.07 |
| Female | 178 | 38.3 | 79.2 | 20.8 | |
| Race | |||||
| white | 375 | 80.7 | 74.7 | 25.3 | 0.97 |
| Non-white | 90 | 19.4 | 74.4 | 25.6 | |
| Education | |||||
| ≤High School | 130 | 28.0 | 64.6 | 35.4 | <0.01 |
| Some College/Vocational School | 123 | 26.5 | 72.4 | 27.6 | |
| ≥College Graduate* | 212 | 45.6 | 82.1 | 17.9 | |
| Marital Status | |||||
| Married/Living as married | 198 | 42.6 | 78.3 | 21.7 | 0.12 |
| Not married* | 267 | 57.4 | 71.9 | 28.1 | |
|
Change in Work/School after
Diagnosis |
|||||
| Yes* | 115 | 24.7 | 80.9 | 19.1 | 0.08 |
| No | 350 | 75.3 | 72.6 | 27.4 | |
| Ongoing Treatment ** | |||||
| Yes | 92 | 19.8 | 65.2 | 34.8 | 0.02 |
| No/Don’t know* | 373 | 80.2 | 76.9 | 23.1 | |
| Treatment Characteristics † | |||||
| Treatment Intensity | |||||
| Least Intense | 47 | 10.1 | 72.3 | 27.7 | 0.91 |
| Moderately Intense* | 290 | 62.4 | 75.2 | 24.8 | |
| Very Intense | 128 | 27.5 | 74.2 | 25.8 | |
| Health Characteristics † | |||||
| Stage at Diagnosis | |||||
| I/ II | 275 | 59.1 | 72.0 | 28.0 | 0.27 |
| III/ IV | 99 | 21.3 | 79.8 | 20.2 | |
| Unknown/ Unstaged | 91 | 19.6 | 76.9 | 23.1 | |
| Number of Symptoms | |||||
| 0-1 | 145 | 31.2 | 80.0 | 20.0 | 0.09 |
| 2-5* | 225 | 48.4 | 74.2 | 25.8 | |
| 6+ | 95 | 20.4 | 67.4 | 32.6 | |
| Number of Comorbidities | |||||
| 0 | 338 | 72.7 | 74.3 | 25.7 | 0.94 |
| 1 | 76 | 16.3 | 75.0 | 25.0 | |
| 2+ | 51 | 11.0 | 76.5 | 23.5 | |
| General Health | |||||
| Excellent/Very good | 211 | 45.4 | 78.7 | 21.3 | 0.02 |
| Good* | 174 | 37.4 | 75.3 | 24.7 | |
| Fair/Poor | 80 | 17.2 | 62.5 | 37.5 | |
*
Category includes the following number of missing values grouped together with the most common response category for analysis: Treatment Intensity=29; Education=1; Marital Status=1; Change in Work/School after Diagnosis=29; Ongoing Treatment=9; Number of Symptoms=13; General Health=4.
**
Refers to participants currently receiving treatment who were scheduled to receive future cancer treatment at follow-up.
†
Measured at Baseline, except age, sex, race, ongoing treatment (see **), and comorbidities, which were measured at diagnosis.