Table 3.
Frequency With Which Themes Were Discussed
| All Participantsa | Patientsb | Surrogatesb | Lines of Text Dedicated to | |
|---|---|---|---|---|
| Overarching Themes | Theme | |||
| N=69 | N=38 | N=31 | N=8939 | |
| n (%) | n (%) | n (%) | n (%) | |
| Advance directives are not sufficient | 34 (49.3%) | 11 (29.0%) | 23 (74.2%) | 1143 (12.8%) |
| Values clarification | 61 (88.4%) | 35 (92.1%) | 26 (83.9%) | 2767 (31.0%) |
| Surrogate decision makers | 43 (62.3%) | 28 (73.7%) | 27 (87.1%) | 1098 (12.2%) |
| Leeway in decision making | 55 (79.7%) | 28 (73.7%) | 27 (87.1%) | 1254 (14.0%) |
| Informing family/friends of wishes | 60 (87.0%) | 33 (86.8%) | 27 (87.1%) | 1973 (22.1%) |
a
Percentage of all participants (both patients and surrogates) who discussed a particular theme.
b
Percentage of individuals who initially self-identified as a patient in patients focus groups and as a surrogate in surrogate focus groups who discussed a particular theme.