Table 1.

Variables common to more than two datasets, considered for inclusion in provisional minimal dataset

Variables common to four datasets (n = 19)	Variables common to three datasets (n = 16)	Variables common to two datasets (n = 24)
Date of birth and patient code	Patient name	Postcode
Gender	Patient centre	Death
Ethnicity	Diagnosis date	Fatigue due to JDM
Family history	JDM rash	Distribution of rash
Onset date	Skin erythema	Abdominal pain due to JDM
Height/Weight	MRI consistent with JDM at diagnosis	Neurological involvement
Symmetrical muscle weakness	CMAS	Weight loss due to JDM
Gottron’s or heliotrope rash	Gottron’s sign	Alopecia due to JDM
Skin ulcers	Shawl sign	Nail-fold changes
Dysphagia or dysphonia	Gastro-intestinal disease / ulceration due to JDM	Dysphagia
Calcinosis	Fever due to JDM	Dysphonia
Cardiac involvement	Abnormal pulmonary function tests	Respiratory symptoms
Arthritis	Contractures	Myalgia
Interstitial lung disease	Lipodystrophy	Eye disease (glaucoma/cataract)
MMT8	Autoantibody data (more than ANA)	Raynaud’s
Muscle enzymes elevated	Physician global assessment	Parental Visual Analogue Scale (VAS)
EMG changes consistent with JDM at diagnosis		Pain VAS
Muscle biopsy consistent with JDM		CHAQ
Medication history		MITAX/MYOACT
		Hospitalisation since last visit
		School absence
		Other significant diagnosis
		Sporting activities
		Pubertal delay