Table 1. Use cases for patient lists in an IDR.
These are cases we have implemented on our IDR.
List use case | Objectives | List origin |
---|---|---|
1. List from IDR Query | Internal query defining a study cohort. Researchers can return for additional data without cluttering results with original sample-defining values | Internal query |
2. Add to Existing Study Database | Get EHR data for consented study participants | External (study) |
3. EHR-derived List | Get population data on a clinically relevant group of patients for practice management or “Meaningful Use” | External (EHR) |
4. Honest Brokering | Allows dissemination of brokered de-identified data and connection with IDR data | External |
5. Biobanking | Add phenotypes to biosamples | Internal or external |
6. Access to Study/Registry Data | Allows queries of study and EHR data together | Internal query |
7. Promoting Collaboration | Share aggregate information on a population to promote collaborator interest | Internal or external |