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. Author manuscript; available in PMC: 2015 Sep 1.
Published in final edited form as: J Pediatr Gastroenterol Nutr. 2014 Sep;59(3):308–316. doi: 10.1097/MPG.0000000000000451

Table 3.

QoL scores and symptom burden at baseline and at 2- and 6-month follow-up

Baseline
Mean (SD)
2 months
Mean (SD)
6 months
Mean (SD)
PedsQL Parent-Proxy Report N=97 N=84 N=97
Total Score 76.2 (17.2) 79.1 (15.1) 79.7 (15.8)
Physical Health 80.3 (20.2) 82.9 (16.9) 83.9 (16.6)
Psychosocial Functioning 72.2 (16.9) 75.2 (16.1) 75.7 (17.6)
  Emotional Functioning 65.6 (20.6) 69.2 (19.0) 69.7 (21.1)
  Social Functioning 82.8 (17.4) 84.5 (16.8) 85.7 (16.7)
  School Functioning 68.4 (19.8) a 71.5 (22.3)b 71.8 (20.2)c
PedsQL Child Self-Report N=59 N=51 N=58
Total Score 78.4 (14.9) 79.7 (16.1) 81.0 (14.5)
Physical Health 82.0 (15.7) 83.5 (16.2) 84.4 (15.7)
Psychosocial Functioning 74.9 (17.1) 76.0 (18.7) 77.7 (17.2))
  Emotional Functioning 72.2 (20.5) 72.0 (21.7) 77.0 (17.7))
  Social Functioning 82.8 (17.4) 85.0 (21.4) 83.1 (21.7)
  School Functioning 68.9 (19.6) 73.7 (22.4) 75.1 (20.3)
Family Impact Module N=97 N=81 N=97
Total 66.9 (20.0) 67.6 (20.1) 69.2 (20.8)
Parent HRQL 68.9 (19.9) 70.0 (20.1) 71.1 (21.0)
  Physical Functioning 67.7 (23.3) 68.8 (22.6) 69.7 (22.5)
  Emotional Functioning 61.1 (22.5) 64.7 (20.9) 66.5 (21.5)
  Social Functioning 76.1 (24.3) 75.3 (25.3) 76.2 (25.4)
  Cognitive Functioning 72.8 (21.6) 74.1 (20.6) 73.9 (23.5)
  Communication 69.1 (24.5) 66.4 (25.5) 67.9 (24.8)
  Worry 45.5 (23.0) 46.3 (23.8) 50.2 (24.1)
Family Functioning 69.4 (23.9) 66.3 (25.2) 69.7 (26.3)
  Daily Activities 65.1 (29.2) 63.6 (28.6) 66.5 (30.2)
  Family Relationships 74.7 (23.3) 72.5 (23.1) 76.3 (20.5)
Symptom Burden
 Symptom number 3.5 (2.3) 3.2 (2.1) 3.0 (2.1)
 Symptom severity 5.5 (4.5) 5.1 (4.7) 4.4 (4.0)

Note: Due to young children not attending school,

a

n=88

b

n= 76;

c

n= 92