Table 2.

Outcome measurement and practice tools.

Patient tools	Family tools
McGill quality of life questionnaire37 Edmonton symptom assessment system (revised)39,40	Adaptation of the Home caregiver needs survey38 Family appraisal of caregiving questionnaire for palliative care41 FAMCARE scale42 Texas revised inventory of grief43
Unpublished instruments
COF-PHLI: palliative spiritual history tool (unpublished work, Pritchard Z.)	COF-PHLI: palliative spiritual history tool (unpublished work, Pritchard Z.) Caring at home for someone with life-limiting illness: family decision guide (unpublished work, Robinson C., et al)