Table. Selected Department of Health and Human Services (HHS) Activities Following the Release of the Institute of Medicine (IOM) Report Epilepsy Across the Spectrum: Promoting Health and Understanding (2012) .

IOM Domain and Recommendations	Selected HHS Activitiesa
Increasing the power of epilepsy data
1. Validate and implement standard definitions and criteria for epilepsy case ascertainment, health care and community services use and costs, and quality-of-life measurement. 2. Continue and expand collaborative surveillance and data collection efforts.	• Adoption of Common Data Element Project • Expansion of national, state, and local surveillance systems to examine epilepsy burden (eg, prevalence, access to care, comorbidity, early mortality) in the general population and high-risk groups • Development and tracking of a national objective on epilepsy in HHS Healthy People 2020 to track access to care
Preventing epilepsy
3. Develop and evaluate prevention efforts for epilepsy and its consequences.	• Identification of biomarkers of epileptogenesis • Identification of genetic factors that increase risk for epilepsy • Advancement of technologies to elucidate brain functioning for improved prevention and treatment opportunities • Examination of bioequivalence of generic and brand-name seizure medications • Development and testing of chronic disease self-management programs (secondary/tertiary prevention)
Improving health care
4. Improve the early identification of epilepsy and its comorbid health conditions. 5. Develop and implement a national quality measurement and improvement strategy for epilepsy care. 6. Establish accreditation of epilepsy centers and an epilepsy care network. 7. Improve health professional education about the epilepsies.	• Elimination of pre-existing condition exclusions in health insurance policies and expanded coverage for care (eg, mental health care) via Affordable Care Act • Identification of promising practices of patient/family-centered coordinated, comprehensive care for medically underserved children and teens with epilepsy • Improvement of clinical services for adults with epilepsy and intellectual and developmental disabilities • Expansion of telehealth/telemedicine services to reach people living in rural and geographically isolated areas • Support of professional training opportunities for providers on epilepsy self-management
Improving community resources and quality of life
8. Improve the delivery and coordination of community services.	• Implementation of evidence-based self-management programs for community-dwelling people with epilepsy • In partnership with the Epilepsy Foundation (national and state affiliates), provision of community-based services, education, and support to people with epilepsy and their caregivers
Raising awareness and improving education
Patient and family education 9. Improve and expand educational opportunities for patients and families. Public awareness and knowledge 10. Inform media to improve awareness and eliminate stigma. 11. Coordinate public awareness efforts.	• Provision of free educational resources on epilepsy self-management programs and resources to people with epilepsy and their caregivers • Provision of professional training opportunities for school nurses, first responders, law enforcement, and other professionals to improve their understanding of epilepsy • In partnership with the national Epilepsy Foundation, implementation of national and targeted public awareness campaigns about epilepsy
Strengthening stakeholder collaboration
12. Continue and expand Vision 20–20 working groups and collaborative partnerships.	• Collaboration in epilepsy stakeholder meetings, and other communities of practice • Expansion of partnerships with other clinical and public health stakeholders
Engaging people with epilepsy and their families
13. Engage in education, dissemination of, and advocacy for improved epilepsy care and services.	—

^a Activities are organized primarily by IOM domains, but some activities overlap more than 1 domain.