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. Author manuscript; available in PMC: 2015 Feb 1.
Published in final edited form as: Semin Oncol Nurs. 2013 Dec 19;30(1):17–25. doi: 10.1016/j.soncn.2013.12.004

Table 1.

Nursing Discipline Development Timeline

Year Development activity Comments
1955 Pediatric cooperative groups funded by National Cancer Institute (NCI)
1979 Nursing Committee established in Children’s Cancer Group (CCG)
1981 Nursing Discipline established in Pediatric Oncology Group (POG)
1981–1997 Nursing activities in the pediatric cooperative groups
  • Initial focus on facilitating protocol implementation

  • Moved toward developing nursing research studies over time

  • Growing support of nursing committees in the cooperative groups

  • Paucity of nurse scientists within the cooperative groups

1997 Initiation of intergroup nursing collaboration (independent of cooperative group merger)
2000 Merger of 4 pediatric cooperative groups to form the Children’s Oncology Group (COG)
  • Provided opportunity to create a new structure for clinical trials nursing and nursing research in cooperative group setting.

  • Recognized need to recruit nursing scientists to build a nursing research agenda.

2000 Inaugural State of the Science in Pediatric Oncology Nursing Research
  • Highlighted new and promising nursing research programs to align with and contribute to scientific mission of COG

  • Strengthened working relationships among researchers, staff registered nurses (RNs), Advanced Practice Nurses (APNs)

  • Fostered collaboration with other disciplines

2000-present Nursing scholars
  • PhD-APN (nursing scholar dyad) partnership to move specific area of research forward in group based on inaugural state of the science groups.

  • Appointment to disease and scientific committees (Neurocognitive effects – Central Nervous System tumor, Fatigue - Acute Lymphocytic Leukemia outcomes, Coping – Adolescent and Young Adult, Self-care - Supportive care)

  • Oncology Nursing Foundation funded initial travel expenses for nursing scholars to attend COG meetings

  • Unanticipated outcome of nursing scholar program included significant number of COG APNs completing doctoral studies (n=10 since inaugural nursing scholar assignments) and now becoming novice nursing researchers.

2004 Second State of the Science in Pediatric Oncology Nursing Research Added 3 nursing scholar groups: Complementary and Alternative Medicine (CAM), Parent treatment decision making, End of life/Palliative care
2006 Developing Nurse-Led Interdisciplinary Research in the Cooperative Group Setting Oncology Nursing Society invitational meeting for interdisciplinary cooperative group teams to develop a nurse-led research study concept. COG team focused on fatigue and related symptoms in Hodgkin Disease.
2008–2012 Nursing Research Traineeships Nursing Discipline portion of COG Chair’s grant included funding for developing the next generation of nursing scholars. Three rounds of 2 year traineeships have been awarded to six trainees thus far.
2000-present Nursing Discipline Protocol Development
  • ACCL01P3: Differences in Parental Caregiving Demands in Childhood Acute Lymphoblastic Leukemia by Length of Infusion Therapy

  • ANUR0631: Stories and Music for Adolescent/Young Adult Resilience During Transplant

  • ACNS0331: A Study Evaluating Limited Target Volume Boost Irradiation and Reduced Dose Craniospinal Radiotherapy 18.00 Gy and Chemotherapy In Children with Newly Diagnosed Standard Risk Medulloblastoma: A Phase III Double Randomized Trial (Embedded aim examining child functional status and quality of life led by nursing scholars)

  • ANUR1131: Stories through Music for Adolescent/Young Adults and Parents (SMART+P) during Treatment provides

2007-present PRO-Resource Center Nursing Discipline collaborated with Cancer Control Committee to develop a Patient Reported Outcomes (PRO) resource center to advance inclusion of pediatric PROs on disease trials.
2009 Strategic planning With expansion of nursing scientists and growing cadre of young investigators, need to move from nursing scholar dyad approach to capitalize on growing network of pediatric oncology nursing scientists – nursing scholar network now open to all interested individuals. Monthly conference calls provide support and networking and identifying promising studies to move forward in group.
2011 Organizing framework adopted Strategic planning yielded a number of suggestions including need for an organizing framework to define the focus of Nursing Discipline.
2012 Evidence-Based Practice initiative Mentored opportunities for nurses to develop evidence summaries to inform clinical trials nursing practice.
2013-ongoing Areas for future focus Current focus on research to inform effective delivery of patient/family education and reducing illness-related distress