Table 5.

Recruited HHT Population for Project 3.

Characteristic	Study Population, No. (%)^a (N=551)	Published Adult/Mixed Series,¹⁹ %^b
Female	338 (61)	60
Age mean (range), year	46.1 (1-89)^c	40-45
Epistaxis	437 (79)	50-96
Telangiectasia	421 (76)	80-90
Brain AVM	129 (23)^d	5-23
Pulmonary AVM	235 (43)	15-50
HHT GI bleeding	75 (14)	25-30
Symptomatic Liver VM	22 (4)	8
Anemia	213 (39)	N/A

Abbreviations: AVM, arteriovenous malformation; GI, gastrointestinal; NA, not available; VM, venous malformation

All values are shown as number (%) except for age

All values are shown as percentages except for age

Twenty-four children (aged <18 years) at registration

Targeted recruitment proportion of 25%