Adolescent interviews
How have your daily routines and managing your medicines changed, as you've gotten older? On a typical day, when do you take your medicines and do your therapies? How do you balance managing your CF with your other activities? What makes it easier to fit it all in? What makes it harder? What happens when you can't fit it all in? Are there other things, besides the time involved, that make it difficult to do your therapies or take your medicines? Does anyone help you manage your daily CF care? How has your parents' involvement in your CF care changed, as you've gotten older? What changes in your parents' involvement in your care do you anticipate in the future? Do you feel you need help with managing your daily CF care? In what ways? Parent interviews
How involved are you as a parent in your child's CF care? Do you help your child manage his/her medications and daily therapies? If so, how? Have you changed how you monitor your child's health as they have gotten older? How? How do other people- other members of your family, friends, people at school, work or other places—help with managing your child's health care? How ready do you think your child is to manage CF and its treatments by him/herself? What would signal to you that your child is ready to manage their care? How concerned are/were you about allowing your child to manage his/her CF by himself/herself? How hard will it be (or was it) for you to give responsibility to your child to manage their CF care?
|
