Table 2.
Map of items by scales in IONB-PRO development
| Number | Item | 23item** | 12item | 15Rasch |
|---|---|---|---|---|
| IONB1 | Incontinence daytime | |||
| IONB2 | Incontinence nightime | |||
| IONB3 | Regular micturition | |||
| IONB4 | Feverish sensation | |||
| IONB5 | Difficult urinating | |||
| IONB6 | Difficulty compressing-decompressing IOB | |||
| IONB7 | Emptying bladder | |||
| IONB8 | Bothering waking at night | |||
| IONB9 | Difficulty in light physical activity | |||
| IONB10 | Fear of being far from toilet | |||
| IONB11 | Limited in drinking liquids | |||
| IONB12 | Able to organize time | |||
| IONB13 | (Avoided public transports) | |||
| IONB14 | (Less productive on work) | |||
| IONB15 | Limited activities | 3 | ||
| IONB16 | Feeling independent | 1 | ||
| IONB17 | Living well with neobladder | 1 | ||
| IONB18 | Felt angry | 2 | x | |
| IONB19 | Felt panicking | 2 | X | |
| IONB20 | Felt irritable | 2 | x | X |
| IONB21 | Felt hopeless | 2 | x | X |
| IONB22 | Fear that the disease went on | 2 | x | X |
| IONB23 | Worries for the future | 2 | X | |
| IONB24 | Felt diminished | 2 | X | |
| IONB25 | Losing self-esteem | 2 | X | |
| IONB26 | Slept bad at night | |||
| IONB27 | Felt tired daytime | 3 | x | X |
| IONB28 | Waking refreshed in the morning | |||
| IONB29 | Needed to rest daytime | 3 | x | |
| IONB30 | Get tired easily | 3 | x | X |
| IONB31 | Less bright in doing things | |||
| IONB32 | Had to stop doing because of tiredness | |||
| IONB33 | Support from families | |||
| IONB34 | Difficult to get on with people | 1 | ||
| IONB35 | Avoided leasure activities | 1 | x | |
| IONB36 | Avoided to go out | 1 | x | X |
| IONB37 | Avoided to stay close to people | 1 | x | X |
| IONB38 | Felt embarrassed | 1 | X | |
| IONB39 | Felt different | 1 | x | X |
| IONB40 | Fear in meeting new people | 1 | X | |
| IONB41 | Afraid of being rejected from friends | 1 | x | |
| IONB42 | Avoided physical contacts | 1 | X | |
| IONB43 | Avoided situations of physical intimacy |
(*)Items are written in order of appearance in the protocol questionnaire IONB-PRO 0.1. Domains are underlined in grey: “Urinary situation” (IONB1-5), “Bladder management” (IONB6-8), “Activities of daily living” (IONB9-15), “Emotional issues”(IONB16-25), “sleep and fatigue”(IONB26-32), “Social issues”(IONB33-43). (**)In the 23 item column, number 1 stands for “Relational life”, 2 for “Emotional life”, 3 for “Fatigue”.