Table 3.
Theme | Subtheme | Exemplar quotes |
---|---|---|
Decision-making processes: it depends | It depends: If you don't ask, I don't tell | I don't really [decide]. Whenever someone asks I tell them … anyone can know if they just ask. (17-year-old male, thyroid cancer) It's not something I go around telling everybody on a day-to-day basis. To me it's in the past. It's something I've moved on from. If it somehow comes up, through other things, then I'll explain it. (19-year-old male, leukemia) |
It depends: If we have a shared experience | If it's a serious situation, I will tell people. At my job, a customer's daughter was in the hospital, so I felt I had to tell her. I like knowing I could be there for somebody in their time of need. (24-year-old female, osteosarcoma) | |
It depends: On our relationship potential | If someone is going to be close to me, or people that do care or are going to care about me, they should know things like that. (17-year-old male, melanoma) If I'm going to be close with this person or I'm going to spend a lot of time with them, I think they should know. (16-year-old female, osteogenic sarcoma) |
|
Perceptions of others' responses | Perceived apprehension | I don't want a sympathy party. (24-year-old female, osteosarcoma survivor) I don't want to say I'm a cancer survivor; it'll depress everyone. (19-year-old male, leukemia) |
Positive responses | My friends hear me talk about it. I could talk about it with them. But I talk about it with them for a reason, because they don't look at me like, “Oh, you poor thing.” (24-year-old female, osteosarcoma) It brings me joy and positive feelings when I share my experience. It's comforting to repeat my story. (18-year-old male, Hodgkin lymphoma) |
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Method of disclosure | Verbal | It's such a big part of my life, and had such an impact on me that I do like talking about it. I'm very flattered when people ask me about it or want to talk to me about it. (19-year-old female, pancreatic cancer) |
Written | It felt really good to let everything out [after reading my English essay] … I was really surprised when people reacted in a positive and supportive way and didn't act weird. (18-year-old female, Hodgkin lymphoma) In my [psychology] essay the goal is to explain how life is not life after cancer; it's more like life with cancer. Just because the disease isn't there you're still living the cancer lifestyle to some extent. (21-year-old male, Ewing sarcoma) I wanted to get the message out to people, but I don't want sympathy. So I wrote it down. It felt really good to just let everything out. (18-year-old female, non-Hodgkin lymphoma) |
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Behavioral | I've been more willing to volunteer and get other people involved. It's time to do it back for everyone else. I got to keep going. I met new people that way and I don't really talk to people about what happened but at those points I really wanted people to understand. (17-year-old male, Hodgkin lymphoma) |