Table 2.
Qualitative studies.
Study (author, year) |
Purpose | Population/ sample |
Research design |
Analysis method |
Comparison | Rigor | Themes |
---|---|---|---|---|---|---|---|
Hounsgaard et al. (2011) [18] | Women's experiences of care decision and self-management in Parkinson's | 10 Parkinson's caregivers |
Phenomenological hermeneutic approach |
Ricoeur's framework |
None | Participant check-back | Learning to live as a partner; contact with health service; between power and powerlessness; change in self-management |
| |||||||
McCabe et al. (2008) [20] | Change in work and recreational changes among people with neurological illness and their caregivers | 31 Parkinson's caregivers |
Interviews specific design is not mentioned |
Content analysis | 28 multiple sclerosis, 27 motor neuron disease, 24 Huntington's |
Audit trail maintained | Changes in patient and carer work situation; feelings about changes in patient and carer work situation; impact of work changes on patients and carer social life |
| |||||||
McLaughlin et al. (2011) [21] | Caregiver's perception of living and coping with Parkinson's | 26 Parkinson's caregivers |
Exploratory approach: audiotaped interviews | Miles and Huberman framework | None | Not provided | Diagnosis, information needed, coordinated and continued medical care, meaning and timing of palliative care, burdens related to caregiving, and economic implication of caring |
| |||||||
Tan et al. (2012) [22] | Understand perceptions of Singaporean caregivers in caring for Parkinson's patients | 17 Parkinson's caregivers |
Part of a large mixed method sequential explanatory design | Ritchie and Spencer's framework | None | Not provided | Four themes of coping and adaptation, challenges of caregiving, effects of caregiving on the caregivers, and need for better caregiver support are reported |