Figure 1. Histogram of symptoms (n = 145) reported by the 22 people with severe multiple sclerosis during the personal interviews.

Blue bars identify symptoms of the Palliative Outcome Scale-Symptoms-Multiple Sclerosis [35]. The “other symptoms” category includes: shortness of breath (n = 2), peripheral edema (n = 2), thermoregulation problems (n = 2), and loss of smell (n = 1). Stars identify symptoms (n = 48, 33%) pertaining to the perineal area.