Table 6.

Example quotations from bereaved caregivers regarding the lack of preparation for the decedent's hematopoietic cell transplantation experience and the need to “stay positive” in the peri-transplant period.

Example bereaved caregiver quote #1: “I didn't feel as well prepared as I could have been for what the picture was going to look like once he was in there. You know, I mean I knew he was going to get really sick…. if he (doctor) had said listen, this is huge thing, like this is no small thing that we are going to do to you. There is a decent chance that you will die while you are here – that you won't even make it out of here. And that you know we're going to show you a movie of someone actually going through… the post high dose chemo and radiation and transplant -- you know like their worst state and this is what it will look like.”

Example bereaved caregiver quote #2: “No doubt in anybody's mind what the risks were. They were very well explained to us. Explained to us very graphically, over and over, you know many different times from different people. So I mean we knew what the risks were but 1 think we were just focusing on positive, positive. This is what we had to do.”