Table 2.
An overview of the categories, sub-categories and examples of representative quotes
| Category | Sub-categories | Quotes |
|---|---|---|
|
Initiating the partnership: patient narratives
|
Being listened to |
“They are more interested in me as a person, in the personal stuff you know. Not just the disease.” |
| Not being listened to |
“They just have to check the computer to get my whole life.” |
|
|
Working the partnership: shared decision making
|
Being invited and involved |
“When I found out that my diabetes, that the values were high you know … I’ve been very clear about that they should teach me before I go home.” |
| Not invited to be involved |
“It’s the senior physician who decides it…well I have that, so that… it’s only to listen and take it.” |
|
| Not being invited but wanting to be involved |
“So any discharge date hasn’t been planned for? No they haven’t done that you see, but…Personally, I do think that I may be a few more days”. |
|
| Not wanting to be involved |
“I’m completely new at this whereas they are specialised in it, of course, so it becomes easy to rely on them.” |
|
| Safeguarding the partnership: documenting the narrative | “Yes, with the help of them, I can’t do it if I don’t have the documentation, hence that they have provided me with the tools in order to enable me to do so.” | |