Table 5. Characteristics of patient and caregiver interview participants.

Characteristic		Patients (N = 36)	Caregivers (N = 11)
		n/N (%)	n/N (%)
Gender
	Female	19/36 (53)	8/11 (73)
Age (years)
	Mean (standard error, SE)	38 (SE: 1.8)	47 (SE: 5.1)
Highest Education Level Completed
	None	8/36 (22)	3/11 (27)
	Primary	17/36 (47)	7/11 (64)
	Secondary	10/36 (28)	1/11 (9)
	University	1/36 (3)	0/11 (0)
Marital Status
	Married	21/36 (58)	10/11 (91)
	Divorced	8/36 (22)	0/11 (0)
	Widowed	4/36 (11)	1/11 (9)
	Single	2/36 (6)	0/11 (0)
	Living as Married	1/36 (3)	0/11 (0)
Household Size	Median (IQR)*	6 (2–10)	6 (3–13)
Living Children per Household	Median (IQR)	3 (0–8)	4 (1–6)
Employment Status
	Subsistence farmer	12/36 (33)	5/11 (45)
	Market vendor	7/36 (19)	4/11 (36)
	Unable to work due to illness	7/36 (19)	0/11 (0)
	Part-time unskilled labor	4/36 (11)	1/11 (9)
	Part-time skilled labor	4/36 (11)	0/11 (0)
	Unable to find work	2/36 (6)	1/11 (9)
Patient Primary Diagnosis
HIV/AIDS§		10/36 (28)
	In HIV care, on ART¶	9/10 (90)
	In HIV care, HCC• Clinic	1/10 (10)
Cancer		19/36 (53)
	Kaposi sarcoma	13/36 (36)
	Cervical cancer	4/36 (11)
	Other malignancy	2/36 (6)
Other serious chronic illness#		7/36 (19)
Illness Duration (months)	Median (IQR)	13 (0–156)
Caregiver Present at Visit/Hospital **		12/36 (33)
Caregiver Relationship to Patient
	Parent		3/11 (27)
	Spouse		3/11 (27)
	Sibling		3/11 (27)
	Other family		2/11 (18)
Time as caregiver (months)	Median (IQR)		13 (0–54)

*IQR = interquartile range.

^§Indicates a primary diagnosis of HIV/AIDS, in the absence of Kaposi sarcoma.

^¶ART = Antiretroviral Therapy.

^•HCC = HIV Care Clinic.

^#Other serious chronic illnesses include: multi-drug resistant tuberculosis (MDR-TB), end stage liver disease, and progressive neurological illness.

**One caregiver was ineligible for study inclusion because she was younger than 18.