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. Author manuscript; available in PMC: 2015 Oct 16.
Published in final edited form as: Med Decis Making. 2014 Apr 16;34(5):590–602. doi: 10.1177/0272989X14529846

Table 1.

Description of instruments used in this study

Instrument Age ranges designed in the instruments Age ranges used in this study Domains (number of items) Response category*
Child Health and Illness Profile (CHIP) (9) Child: 6–11
Adolescent : 12–17
Child : 6–11 5 domains (45)
Satisfaction (9)
Comfort (12)
Resilience (8)
Risk avoidance (8)
Achievement (8)
1=“never”, 2=“almost never”, 3=“sometimes”, 4=“almost always”, 5=“always”
KIDSCREEN-52 (10) 8–18 8–18 10 domains (52)
Physical well-being (5)
Psychological well-being (6)
Moods & emotions (7)
Self-perception (5)
Autonomy (5)
Parent relationship & home life (6)
Social support & peers (6)
Social acceptance & bullying (3)
School environment (6)
Financial resources (3)
1=”never”, 2=“seldom”, 3=”sometimes”, 4=”often”, 5=”always”
KINDL (11) Kiddy KINDL: 4–7
Kid/Kiddo KINDL: 6–16
Kiddy KINDL: 4–7
Kid/Kiddo KINDL: 8–16
6 domains (24)
Physical well-being (4)
Psychological well-being (4)
Self-esteem (4)
Family functioning (4)
Friends (or social functioning)(4)
School functioning (or everyday functioning relevant to school or nursery school/kindergarten) (4)
1=”never”, 2=”seldom”, 3=”sometimes”, 4=“often”, 5=”all of the time”
Pediatric Quality of Life Inventory 4.0 (PedsQL) (12) Toddler: 2–4
Young child: 5–7
Child: 8–12
Teen: 13–18
Toddler: 2–4
Young child: 5–7
Child: 8–12
Teen: 13–18
4 domains (21 for 2–4 years old; 23 for 5–18 years old)
Physical functioning (8)
Emotional functioning (5)
Social functioning (5)
School functioning (3 for 2–4 years old)
School functioning (5 for 5–18 years old)
1=”never”, 2=”almost never”, 3=”sometimes”, 4=”often”, 5=”almost always”
*

Higher scores indicate better HRQOL for all items

Domain names for the Kiddy KINDL (4–7 years)

The Kid/Kiddo KINDL (8–16 years old) is a combined version of the Kid (8–12 years old) and the Kiddo (13–16 years old) KINDL