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. Author manuscript; available in PMC: 2015 Oct 1.
Published in final edited form as: J Intellect Disabil Res. 2014 Feb 17;58(10):940–952. doi: 10.1111/jir.12121

Table 1.

Reported Rates of ASD among Individuals with FXS

Authors (Year) Sample characteristics Diagnostic procedures Detected rates of Autism
Bailey, Raspa, Olmsted, & Holiday (2008) 976 males; 259 females (national survey)

6–30+ years (Mage not reported)
Caregivers asked: “Has this child ever been diagnosed or treated by a medical professional for any of the following conditions… autism?” Males: 46%
Females: 16%
Clifford, Dissanayake, Bui, Huggins, Taylor, & Loesch (2007) 33 males; 31 females (ascertained via clinical referrals)

5–60 years (M23.2)
Participants who scored above SCQ thresholds were administered the ADI-R & ADOS Males: 36% on ADI-R; 67% on ADOS for autism/spectrum; 27% on ADI-R+ ADOS autism/spectrum
Females: 3% on ADI-R; 13% on ADOS for autism/spectrum; 13% on ADI-R+ ADOS autism/spectrum
Garcia-Nonell, Ratera, Harris, Hessl, Ono, et al. (2008) 90 males

3–25 years (M ~8)
ADOS, DSM-IV 63% on ADOS for autism/spectrum + DSM-IV for autism or PDD-NOS
Hall, Lightbody, & Reiss (2008) 31 males; 29 females

5–20 years (M~13)
ADOS Males: 74% for autism/spectrum
Females: 45% for autism/spectrum
Harris, Hessl, Bacalman, Goodlin-Jones, Ferranti, et al. (2008) 63 males

2–19 years (M7.9)
ADI-R, DSM-IV & ADOS 49% on ADI-R; 49% on ADOS for autism/spectrum; 35% on DSM-IV for autism; 59% on DSM-IV for PDD-NOS; 27% on ADI-R+DSM-IV+ADOS autism/spectrum
Hernandez, Feinberg, Vaurio, Passanante, Thompson, et al. (2009) 56 males

Age range not reported (M 4.7 years
ADI-R, DSM-IV 43% on ADI-R+DSM-IV
Rogers, Wehner, & Hagerman (2001) 23 males; 1 female (ascertained via clinical referrals)

2–4 years (M 2.9)
ADOS, DSM-IV, & ADI-R (used reduced cut-off scores for the ADI-R repetitive behavior domain) 46% on ADI-R; 33% on ADI-R+ DSM-IV+ ADOS autism/spectrum

Note: ADOS rates are reported for children who met criteria for either “autism” or “autism spectrum”. ADI-R rates report the percentage of children who met criteria of “autism” (the ADI-R does not provide diagnostic cut-offs for “autism spectrum”). ADOS=Autism Diagnostic Observation Scale; ADI-R=Autism Diagnostic Interview-Revised; SCQ=Social Communication Questionnaire; DSM-IV=American Psychiatric Association Diagnostic and Statistical Manual-4th Edition; PDD-NOS=Pervasive developmental disorder-not otherwise specified.