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. Author manuscript; available in PMC: 2015 Nov 1.
Published in final edited form as: Genet Med. 2014 Apr 24;16(11):846–853. doi: 10.1038/gim.2014.37

Figure 1.

Figure 1

Recruitment, retention, and attrition of noncarriers, unaffected carriers, and affected carriers at baseline and 2-year follow-up.

a One began study participation after the seasonal cutoff date (an eligibility criterion intended to provide seasonal adjustment for measures of photoprotection). The other two were not invited to the follow-up study because one participant was adopted and the other was from a small kindred. Given the focus on family communication and other familial issues in other parts of the questionnaire, it was decided that these participants' experience with genetic counseling and test reporting would be substantially different from the experiences of other participants.

b Retention rates for the 2-year follow-up assessment were calculated out of the 57 eligible participants (26 unaffected noncarriers, 15 unaffected carriers, and 16 affected carriers) who were invited to the follow-up study.