Table 2.

Motivating factors for patient participation in registries

				1.																																																																																										Altruistic attitudes – the perception of benefit to the greater good even beyond immediate individual benefit or the potential for individual benefit [10,16]
				2.																																																																																										That data will be used by responsible people for legitimate purposes – participants desire clear purposes for collecting data and clear methods for its release [10]
				3.																																																																																										Advancement in research and the possibility of elucidation of treatment or cure, [11] and subsequently improved quality of life [16]
				4.																																																																																										Desire for prompt information after diagnosis [7]
				5.																																																																																										Perception of equal communication with health practitioners and researchers [7]
				6.																																																																																										Other factors influencing participation include satisfaction with care, [13] age, education, gender and recruiting site [12,22]