Table I.
Characteristics of participants (n is noted if not 287) and probands (n=190).
| Parent Participants | Percentage (%) |
|---|---|
| Age Group | |
| ≤ 40 years | 53.3 |
| >40 years | 46.7 |
| Male | 36.2 |
| Race | |
| White | 94.4 |
| Other | 5.6 |
| Education (n=285) | |
| ≤ HS Diploma | 26.1 |
| Some college or more | 73.9 |
| Household income (n=274) | |
| ≥$75,000 | 42.0 |
| $35,000–$74,999 | 35.0 |
| < $35,000 | 23.0 |
| Employment (n=284) | |
| Employed/Self-employed | 74.4 |
| Homemaker | 14.4 |
| Unemployed | 10.2 |
| SOC1 occupational classification (n=281) | |
| Management, business, science, and arts | 47.0 |
| Other | 53.0 |
| Searched on-line for medical information (Yes) | 84.0 |
| Searched on-line for information on heart defect (Yes) | 73.5 |
| Probands | Percentage (%) |
| Age at consent for LVOT study | % |
| 0–1 year | 25.4 |
| 2–8 years | 32.8 |
| 9–15 years | 27.9 |
| 16–21 years | 13.9 |
| Primary Congenital Heart Defect | |
| Coarctation of the aorta (CoA) | 41.1 |
| Aortic stenosis (AS) | 20.9 |
| Bicuspid aortic valve (BAV) | 16.7 |
| Hypoplastic left-heart syndrome (HLHS) | 14.3 |
| Other (Shone2, IAA-A3, MS4) | 6.9 |
1
Standard Occupational Classification
2
Shone complex
3
Interrupted aortic arch type A
4
Mitral stenosis