Table 4.

Ranked weighted averages of participants’ ratings of the factors influencing their decisions to join or to stay in a research study (N = 4,000–4,300)

Factors influencing decision	Relative importance in decision to join a study				Relative importance in decision to remain in a study
	Subgroups				Subgroups
	Healthy volunteer	Disease‐affected volunteer	Study involves drug, device, procedure		Healthy volunteer	Disease‐affected volunteer	Study involves drug, device, procedure
			No	Yes			No	Yes
To help others	1	1	1	1	1	2	1	1
Concern about the topic	2	2	2	2	2	3	2	2
Because of center's reputation	3	6	4	5	4	7	4	7
To obtain education/learning	4	5	3	6	5	5	3	6
To find out more about my disease	7	3	5	4	8	1	6	4
To gain access to new treatment	8	4	6	3	10	6	8	5
Because no other options available	11	7	11	7	13	10	12	10
To obtain free healthcare	9	10	10	9	12	12	13	12
Because of prior positive experience	5	8	7	8	7	11	9	11
To earn money/payment	6	12	8	12	9	15	11	15
Because of family influence	10	11	9	11	14	14	14	14
Because of caregiver encouragement	12	9	12	10	15	13	15	13
Because of relationship with the team	‐	‐	‐	‐	11	9	10	9
Because of improved health	‐	‐	‐	‐	6	4	7	3
Because of feeling valued	‐	‐	‐	‐	3	8	5	8