Table 2.
Parent ratings of decisional abilities for males with FXS as a function of decisional task and age
| Decisional Task | Percentage of Males <18 yrs. (n = 133) |
Percentage of Males 18 or over (n = 313) |
|---|---|---|
| Understand being asked to participate in study | ||
| Not at all capable | 48.9 | 33.6 |
| Capable but with a lot of support | 34.6 | 38.0 |
| Capable with only minimal support | 12.0 | 16.3 |
| Fully capable | 4.5 | 12.1 |
| Understand that study medication differs from regular | ||
| Not at all capable | 45.1 | 29.6 |
| Capable but with a lot of support | 33.1 | 32.2 |
| Capable with only minimal support | 12.0 | 20.3 |
| Fully capable | 9.8 | 18.0 |
| Understand might get medication or sugar pill | ||
| Not at all capable | 64.7 | 46.5 |
| Capable but with a lot of support | 24.8 | 26.5 |
| Capable with only minimal support | 7.5 | 16.5 |
| Fully capable | 3.0 | 10.7 |
| Understand and weigh potential benefits and risks | ||
| Not at all capable | 76.7 | 57.6 |
| Capable but with a lot of support | 18.1 | 28.0 |
| Capable with only minimal support | 3.8 | 10.9 |
| Fully capable | 1.5 | 3.5 |
| Realize choice and ability to withdraw at any time | ||
| Not at all capable | 56.1 | 36.7 |
| Capable but with a lot of support | 28.0 | 30.2 |
| Capable with only minimal support | 11.4 | 17.7 |
| Fully capable | 4.6 | 15.4 |
| Able to make a decision about study participation | ||
| Not at all capable | 66.2 | 44.6 |
| Capable but with a lot of support | 27.1 | 33.0 |
| Capable with only minimal support | 2.3 | 13.1 |
| Fully capable | 4.5 | 9.3 |
Note: Percentages may not sum to 100 due to rounding.