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. Author manuscript; available in PMC: 2016 May 1.
Published in final edited form as: J Med Ethics. 2014 May 22;41(5):391–397. doi: 10.1136/medethics-2013-101987

Table 3.

Comparison of subjects’ understanding of purpose of research by motivation and doctor status.

Motivation Doctor Status
Responses (N (%)) Direct personal benefit N= 54 Altruism/dual N= 35 Own doctor N= 39 Other N= 49
Is the primary goal to benefit the subjects participating in the study, or future PD patients?a
1. Primarily intended to help subjects participating in study 5 (9.3) 0 (0) 0 (0) 5 (10.2)
2. Primarily intended to help future PD patients 28 (51.9) 20 (57.1) 25 (64.1) 24 (49.0)
3. Primarily intended to advance science/gain knowledge 6 (11.1) 1 (2.9) 3 (7.7) 3 (6.1)
4. Primarily intended to benefit the sponsor 1 (1.9) 0 (0) 0 (0) 1 (2.0)
Both 1 and 2 10 (18.5) 12 (34.3) 9 (23.1) 12 (24.5)
Both 2 and 3 2 (3.7) 2 (5.7) 1 (2.6) 3 (6.1)
Other 2 (3.7) 0 (0) 1 (2.6) 1 (2.0)
a

Fisher’s exact test (primarily intended to help subjects vs. all other responses): p=0.14 for direct personal benefit vs. altruism/dual; p=0.05 for own doctor vs. other.