Table 2.
Characteristics of survey respondents
| Characteristic | Percent of respondents |
|---|---|
| Age | |
| 18 to 24 | 29% |
| 25 to 34 | 33% |
| 35 to 44 | 20% |
| 45 to 54 | 11% |
| 55 to 64 | 6% |
| 65 to 74 | 1% |
| Gender | |
| Male | 36% |
| Female | 64% |
| SCD Type | |
| Sickle Cell Anemia (SS) | 64% |
| Sickle Hemoglobin C Disease (SC) | 21% |
| Sickle Beta-Thalassemia Disease (Beta) | 10% |
| Unspecified Sickle Cell Disease (Other) | 5% |
| How much did your last pain attack (crisis) interfere with your life? | |
| I've never had a pain attack (crisis) | 2% |
| Not at all, I did everything I usually do | 10% |
| I had to cut down on some things I usually do | 21% |
| I could not do most things I usually do | 30% |
| I could not take care of myself…needed some help… | 18% |
| I could not take care of myself and needed constant care… | 19% |
| About how long did your most recent pain attack (crisis) last? | |
| I've never had a pain attack (crisis) | 2% |
| Less than 1 hour | 4% |
| 1 - 12 hours | 18% |
| 13 - 24 hours | 8% |
| 1 - 3 days | 22% |
| 4 - 7 days | 25% |
| 1 - 2 weeks | 14% |
| More than 2 weeks | 7% |
| Patient rating of severity of pain in last attack (0 to 10) | |
| Mean | 7.76 |
| Standard Deviation | 2.27 |