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. Author manuscript; available in PMC: 2016 Jan 1.
Published in final edited form as: J Pain Symptom Manage. 2014 May 28;49(1):66–78. doi: 10.1016/j.jpainsymman.2014.05.004

Table 1.

Themes Generated from Focus Groups With Clinicians, Interviews with Parents, and Literature Review

Communication
Privacy and other PICU Environment Issues
Decision to Withdraw Life Support
Decisions about the Circumstances of the Death
Pain and Symptom Management
Emotional Needs of Child
Emotional Needs/Support of Family
Physical and Instrumental Needs of Family
Spirituality and Religion/Cultural Issues
Continuity/Coordination of Care
Acting like a Parent/Parent as Caretaker in PICU
Grief and Bereavement
The Death Event