Table 2.

Participant preferences, concerns, and illustrative quotes regarding Information at One’s Fingertips theme.

Preference		Concern	Quote
General CF information
	Educational resource for self and others (family, friends)	Generic information not useful, must be CF specific	A: “Sometimes I’ll [wonder when] something happens health-related to me, ‘Is that normal for everyone or…is that happening to me because I have CF?’ And it’s hard to find particular sources where I can find that out.” [Age 35, Female]
Personal CF information
	Central, accessible storage for personal CF data (eg, medical history, prescriptions)	Privacy, data security	B: “I think that CF can be kind of overwhelming and it’s really nice to have one central location to keep important information and data.” [Age 34, Female]
			C: “Whenever you go to [a] doctor [they ask], ‘What’s your current list of medications?’…It’d be nice to have the whole history…and then have a place for notes for how well it worked.” [Age 48, Female]
			D: “I am not going to put medical information in one place unless I know that I can control who sees it.” [Age 31, Male]
Individual behavioral and health outcomes
	Self-monitor adherence and health status data over time	Cannot guarantee accuracy of self-report, risk for dishonesty	E: “If you had an app that [tracked medication] doses…that said I missed 16 doses [on] 16 mornings…that might be a little bit of a wake-up call for me.” [Age 38, Female]
			F: “I like being able to see…where I fall on the [PFT] chart and correlate that with how I’m feeling…so if this app can track when I do my meds, when I do my treatments, and I correlate it to how I’m feeling maybe I’ll discover something like, ‘Oh, I feel the best when I do my vest at 1 pm instead of 8 pm.’ ” [Age 24, Female]