Table 4.

Participant preferences, concerns, and illustrative quotes regarding Communication theme.

Preference		Concern	Quote
With medical team
	Contact with CF providers between visits	May not be as responsive as traditional telephone or email contact, don’t want to replace human contact with providers	A: “I’m not always in a place where I can call them, so if I can just shoot a text…that would be convenient…If they want me to do something out of the ordinary...I want to [ask], ‘How exactly did you want me to do this?’ ” [Age 23, Male]
			B: “If there is an impending exacerbation coming up, being able to communicate with them about that and do a…plan of action.” [Age 35, Female]
			C: “In the everyday world [electronic communication] just seems to be replacing talk and conversation and you know, communicating that way, I don't want that to happen [with my doctors].” [Age 35, Female]
	Sharing health data with CF providers can facilitate informed conversations during medical visits	Discomfort with medical team having high level of monitoring ability	D: “Obviously they’re the experts, but…it’s empowering to…go into an appointment with salient data.” [Age 34, Female]
			E: “If you started to get sick and the nurse says, ‘Well how have you been doing…taking these medications?’…Being able to say, ‘Yeah, here is what I’ve been doing.’ …would be a nice function to have.” [Age 31, Male]
			F: “I don’t know if I’d want it but…it would be good for them to see…how much you did a treatment in a week. I feel like they probably should see that but you might not want them to.” [Age 21, Female]
Within health care system
	Care coordination between CF team and subspecialists or other providers		G: “My regular doctor…puts me on [a medication] for high blood pressure…then I need to go talk to my CF doctor to make sure this isn’t going to screw up my [CF medication] so that they know what I’m on…if there’s a way…when I’m up at CF clinic and they change my regimen you could use the app and it will automatically…send it to my regular doctor…so I am not manually having to remember to send stuff back and forth.” [Age 48, Female]
	Between pharmacy and CF team to submit prescriptions, authorize refills		H: “I could have a list of medications and submit a refill request to my doctors [through the app]…ideally it would integrate with the pharmacy app…and have the ability to say, ‘You’re out of refills on this,’…and it could notify my doctor [directly] instead of notifying [my pharmacy] to notify my doctor.” [Age 28, Male]
With family
	Parents would find it valuable to help monitor teens’ adherence	While potentially helpful for others, adults did not need a new communication channel	I: “It might be good for parents to…be able to see when the medication is being taken and when the treatments are being done.” [Age 30, Male]
			J: “I would use other more direct messages.” [Age 28, Male]
			K: “I would probably continue to communicate with them the way I already do.” [Age 33, Female]