Table 5.

Participant preferences, concerns, and illustrative quotes regarding Socialization theme.

Preference		Concern	Quote
With other people with CF
	Novel opportunity to network, given prohibitions on face-to-face contact	Could feel discouraged or guilty seeing others doing better or worse than you	A: “Because people with CF can’t be in the same room as each other,…being able to see someone else with CF is much more profound than just exchanging emails with some anonymous person.” [Age 28, Male]
			B: “I don’t like hearing about CF people that aren’t doing well. I have a hard time distancing myself from it. It’s hard having to filter through all this sadness to get kind of connected with someone.” [Age 26, Female]
			C: “I didn't really like it only because some people had it worse than me and if it kind of brought me down because I felt like this is where I'm heading and I just didn't like that…So I don't know if I'd really want to talk to any other people with CF, I don't want to like be depressed.” [Age 32, Male]
	Access to people with similar experiences	Variability within CF does not guarantee shared experiences	D: “At some point in our lives, we feel inadequate and we're not as good as normal people so this gives us our own sense of community that way we can relate to…people who are like us.” [Age 27, Male]
			E: “It's always nice to know another mom that has CF, like, ‘How do you juggle getting your child out to school versus doing your treatment?’, you know that sort of same situation.” [Age 38, Female]
			F: “The ability to ask questions to a larger community regarding…issues or problems that you may be having from a CF standpoint…A CF to CF community...[is] what I found lacking, that I didn't have when I was growing up.” [Age 31, Male]
			G: “There’s like 1800 different kinds of CF right now and they’re still discovering more, so it’s never going to be a specific thing unless you could somehow log…your exact genes…and then maybe connect with people that have the exact same ones.” [Age 30, Male]
	Social support opportunities for families, partners, caregivers of people with CF	Challenge to maintain other person’s privacy or anonymity if organized through app of person with CF	H: “I think that support for the family and friends is important…for people who have CF…talking to significant others of people who have CF.” [Age 28, Male]
			I: “Something to…connect friends and family so that they understand the disease a little bit more, and maybe they can…connect with you on a different level.” [Age 32, Male]
Comparisons for motivation
	Self-monitoring in context of others with CF	Discouraging if not meeting goals, doing worse than others	J: “To build a community…would help provide people a better incentive…more of the ‘We’re in this together.’ Someone else has worked 12 hours a day but they’re still doing their medicine, you know I can.” [Age 28, Male]
			K: “Sometimes you don’t want to be comparing yourself to other CF-ers because it is depressing… like, ‘She has worse lung function than me but she is never sick, why is that?’…It can be tough because no two cases are the same and yet we all…have similar therapies so it can be frustrating to see a better outcome than yours if you are doing all the same things if not more.” [Age 24, Female]
	Potential for motivation and reinforcement from peers	Concerns about anonymity and privacy, ability to be identified	L: “If you’re going to see somebody that is doing pretty well and you can…talk to them about how they handle it or what their regimen is, then maybe you can pick up things from them or share with them what you do.” [Age 35, Female]
			M: “If I were to have my data compared to the whole…I wouldn't want them to say, ‘Oh there's someone named [removed] that didn't do treatments today.’ ” [Age 26, Female]